We just got home from another stay at Children’s. Ava’s blood glucose levels were 41, so she was admitted for a few days. Genetics says this is how Mito effects some children – dysmotility and hypoglycemia. She’s having the big muscle biopsy at the same time as her gtube placement. We’ll find out more when the results of that biopsy are back in a few months – it takes 2+ months to get results!
My name is Hope. I have amazing children that I'm lucky enough to spend my days with. I'm also a molecular biology major, which I really love. I'm a Neuroblastoma Stage IV survivor still dealing with the effects of that not only with myself, but my children as well. My youngest daughter is medically fragile. She has a metabolic disorder, airway problems, and many more issues. My blog has turned into a way to chronicle these problems, but I do pray for a day that she has no medical problems to write about! Welcome to my life!