I’ve been sitting in this chair holding my sleeping toddler for 2 hours. I can’t help but looks down at her long eyelashes. Such long eyelashes…. For the past few days I’ve been really struggling. Maggie lost her battle with Mitochondrial disease. This was a huge blow. Reading about Eithene, Cooper and Samantha also fighting so hard. This is the same disease my baby has. I can’t wrap my mind around this.
I check Ava’s blood sugar at least 6-8 times a day. Sometimes more. She never cries. Never whines. Never whimpers. All she asks for is a band-aid. Yes, there have been many times all her fingers were covered in band-aids. She doesn’t mind. She’s very proud of her band-aids. She will happily tell you how she got them. “Mommy checked my blood sugar”. How brave she is. How I wish a band-aid would heal her Mito!