On Tuesday, we headed out to our other new hospital - Huntsman Cancer Institute in St. George. This is where Haven will get her port flushed every 4 weeks, and then every 6 weeks she will get her labs drawn, and then every 8 weeks she will get IVIG. So, we actually get a one month break, and then we’re in ever two weeks for a month….then another month break. Every few months she will head to SLC Primary Children’s for a full run down of labs and check ups.
Her room was very nice at this hospital. It’s bigger than my labor and delivery room, and she had a private bathroom. I was very surprised and happy. She was very well taken care of.
Here is Haven hanging out with the Child Life specialist. He was great, and they talked about everything.
Haven’s first time having a male nurse. Jason was great… He was very willing to let Haven do her own flushing and everything. Accessing the port was easy, and she did very well. She, of course, made sure he did everything the way her other nurse did it.
Nap time. I let her stay up watching Happy Feet Two the night before so she’d be nice and tired. She fell asleep about 20 minutes in to the infusion of the IVIG.
Oh….5 hours later, we are done with the IVIG. Now to do a flush of saline…wait 30 minutes…flush again, and close up with Heparin.