Happy birthday to my beautiful baby girl!!!! Can’t believe you are 9 years old today. In your short 9 years you’ve managed to overcome cancer and survive some of the scariest surgeries and have taken control of ROHHAD Syndrome. You amaze me and your father and we couldn’t be more proud of you!!!!
My name is Misty Fowler. I am a wife of 9 years and a mother to a 6 year old with Ganglioneuroblastoma Cancer and ROHHAD Syndrome. I work for a sport clothing apparel company. I currently work to learn more about my daughter's rare diseases and take pride in nurturing my family.