Kel

About our blogger: Kel

These days, I feel like I wear many hats: chef, secretary, financial planner, immigrant, speech therapist, that crazy lady down the street... At the end of the day, though, it always comes down to being a loving wife to my husband John and a mom to our two kids, Eric and Danny. It amazes me daily how quickly they grow and how much they fill our lives with joy. I spend most of my time blogging about the daily adventures of motherhood, and I am proud to be a part of the JustMommies blog family both as a contributor and editor.

John and I are blessed to be parents to a special needs child. Our younger son Danny was born with congenital CMV, and I am active in the community trying to spread awareness of this surprisingly common illness. Among his challenges, Danny is deaf, and he uses cochlear implants to hear.

Visit Kel @ http://quietsong.net/

Posts by Kel:

April 3rd, 2013

Autism Awareness

It’s Autism Awareness Day. Facebook is covered with images and statements – “I love someone with autism!” “Light it up blue for autism!” “Autism is seeing the world differently!” As a mom with a kid somewhere on the spectrum, I should probably be jumping right in, but none of it feels like it really raises much awareness. We live in a time where, fortunately, you’d have to live under a rock to not know “autism.” Autism isn’t like a number of other conditions out there that are practically unknown. (CMV, anyone?) I’d venture to say it’s reached the same level that breast cancer has for awareness; everyone knows the name and knows we should raise awareness for it, but no one really knows how to help or what it’s like to live with until it affects one of their own.

So today, I’m going to open up a little about the truth of autism in our home. Autism is different for every person and every family, which is what makes it so hard to understand sometimes. In some families, autism shows itself in the form of strong obsessions or extreme disinterest, echoing everyone’s speech or not speaking at all, stim behaviors like spinning or hand flapping or biting or scratching or beating heads against the wall. We walk right down the middle – Danny is neither a high functioning Aspergers child nor a low functioning child with classic Autism. As in all things, he makes his own path.

For us, autism means spending a lot more time at home. Going out with Danny Read the rest of this entry »

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February 25th, 2013

Late One Night

“I want McDonalds,” came Danny’s voice down the stairs.

“You can’t have McDonalds right now, Danny,” followed Eric’s voice softly. “It’s late. McDonalds is closed.”

It was over an hour past bed time, but still talking and laughter came from their room. When I put Andrew to bed and walked past their open door, Eric sat on his top bunk reaching down, and Danny stood below waving and giggling. I knew I should put an end to it and shoo them into bed…but it was hard to do.

See, when I found out I was having a second boy, I imagined late nights in bunk beds with two brothers talking, whispering jokes, teasing and laughing. Once Danny was born and we learned he was deaf, I thought I had to give that up. How could you sign while in separate bunks? We learned about cochlear implants and I worried a little – I mean, he’d sleep with them off – but maybe he’d keep them on long enough…

Then the “other” crept in, the missing social piece, the difficulty speaking, the global delays. With each little bit of the “other,” I saw those bunk bed conversations drift away.

By now, they were a distant memory, almost forgotten and well left behind…

…until I heard those voices drifting. So I let them go on a little longer than I should have, simply because it made me smile.

January 30th, 2013

10 Months

Andrew is getting so big, so fast! At 10 months, he pretty much has perfected cruising. Every now and then we’ll catch him letting go of what he’s holding onto, briefly, but for the most part he has no interest in independent standing. When I try to play with him with it, he refuses to put his feet down and stand! I’m in no rush, though, so he can be a crawler all he wants. For all he is not walking, though, he is climbing – he will push things around so that he can climb onto them and, from there, further up. He’s managed to get onto his brothers’ desk in their room, onto the couch, onto the kitchen table… You name it. He has, at least, had the decency to master going down though, so he is no longer stranded or prone to falling all over the place; he very neatly turns around and goes feet first off everything.

With tooth #5 being cut this month, he took a bit of a…break from eating solids. He would still munch down purees, but until the end of the month, he wanted little to do with finger food. He’d eat a little, and expand his horizons some, but it was always in small quantities. Along with the food “regression” or sorts came a sleep regression, and hooooooly cow, the kid slept terribly! Waking 3-4 times a night has been the norm around here. He uses the awake time, it seems, to figure out babbling, because he’s been a pretty vocal kid with his /d/ and /b/ sound busting out again.

The most exciting part of 10 months, though, is the communication. Now, I’m not talking speech – there’s been no first word yet – but he’s getting the back and forth of communication down. We will blow raspberries at each other with great turn taking, and he’ll pause and wait for me to blow one (or his brothers, even Danny gets in on this action) before he goes on. Danny and I play an “ah-choo” game, and Andrew has picked up on it… If I sneeze (legitimately or not), often he will gives a squeal (very high pitched “ahhhhh!!”) and then blow a raspberry, which is how Danny play-sneezes a lot of the time. It kind of cracks me up, and I hope to catch it on video soon! He’s also been experimenting with signing “milk” when he nurses, and “all done” at times as well. He’s figuring out waving and will sometimes wave when someone waves to him…though more often than not, it’s after they disappear out of sight. He’s putting his arms up/out when he wants up, as well. Receptively, he’s understanding more and more, which is exciting and says to me that a word or two will probably be coming soon!

Andrew’s favorite games this month have been the drop game (yep, we’ve hit that stage) and crawling around the house making as big a mess as possible. He is starting to experiment with putting things back in though too, and will diligently empty and then refill stuff…at least part way, before getting distracted. You can just watch him and see him trying to figure out how things go together; I love watching the gears turn in his little head!

We are onward and upward to big things around here :)

December 20th, 2012

One of Those Days

It’s 4:15 on a Thursday, and I’m sitting on the couch with a sleeping baby sprawled across my lap, small mountains of crumpled up Kleenex around me from blowing my nose way too many times, and a mess of baby toys on the floor in front of me – one of the many reasons I’ll never be mom of the year. It’s early release Thursday, so Eric is home already. Instead of doing something educational or crafty or athletic, like Perfect Mom would, I have a play station controller in my hand. He’s finished his homework, and when asked what he’s like to do, he insists he wants to watch me play Final Fantasy. I should say no, but hey, let’s be real – if your kid begs you to play your video game, and it’s something appropriate for them to watch, you check if he’s sure than you pop that sucker in with a silent “finally! I haven’t gotten to play in weeks!”

Andrew stirs as I get to a boss, so I offer him some milk and he gladly sucks away while I try to finish just one more battle before turning it off. Suddenly, warmth. Wet, seeping warmth all over my lap…and though I may pee a little when I sneeze, I’m not prone to relieving myself without feeling it, so I know something has gone amiss with Andrew’s diaper.

Lovely.

I pause, much to Eric’s dismay, and rush Read the rest of this entry »

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December 12th, 2012

7, 8, 9 Months Old

Catch up time!

By 7 months, Andrew was crawling full speed, cruising along furniture, and climbing – including going up stairs. He could not go down, though; he would just crawl right off and fall if allowed to. He just barely started to babble dada. He started to eat solids, but did not like purees at all, preferring to feed himself puffs and yogurt melts.

At 8 months, he was still crawling and cruising, bridging between things if they were right beside each other. He was broadening his horizon on finger foods, loving it when I gave him half a banana or something similar that he could gnaw on. He switched to babbling baba, and started to get more vocal.

At 9 months, he was starting to eat purees too along with more finger foods. His favorites were whole steamed green beans and Cheerios. He was still babbling primarily baba, with lots of great intonation. His pincer grasp was fully developed, and he could bridge between things cruising a bit further apart, but still no independent steps. He also cut his next 2 teeth, bringing his total to 4.

December 4th, 2012

Dear Santa

I am hopefully going to be going back in time over the next little bit and putting down all the stuff I wanted to but haven’t over the last few months. I had really wanted to keep using pictures in all posts, but honestly, not going to happen. The time it takes to download a picture, crop it, and upload it…is pretty much all the time I have before Andrew is demanding attention again, so the actual blogging doesn’t happen…and I want this stuff down!

Eric has written his letter to Santa, and it amuses me greatly. He sat down to write it with the intent of correcting his verbal request to Santa the day before: he wants a 3ds, not a regular ds like he had said. Well, while he was writing, he went and grabbed the Toys R Us ad for the week and went nuts. He wants a Wii.U and a game for it, a 3ds, 2 Pokemon games, a Batman game, Skylanders, another game…”and I love you, Santa.” Just in case, you know, he needed a few extra points to get his list filled. (We have had a discussion on how Santa does not bring seventeen million expensive gifts, heh.)

Danny got to visit Santa this year too, in a special way – one of the malls had a “caring Santa” time before the mall opened in the morning for special needs kids. They brought him in early and made a quiet, safe environment. They were right across from the play area in the mall, and the few kids there went one by one from the playground straight to Santa. There were no lines, no loud noises and chaos, and staff who “got it.” We were not forced to buy their packages, either… In fact, they offered to take pictures with my camera so I could be up there with Danny helping him through the interaction. Danny walked up, gave Santa a big high five, then giggled and said, “ho ho ho!” He sat by Santa, with me beside him, and cheesed for the camera…no rush, just letting us do what we needed to do. I felt bad that I was not buying anything, so I asked if I could leave a tip and was shot down quite handily.

It was so neat.

Andrew wasn’t so into sitting on Santa’s lap though, ha. He did the day before, though.

Ho ho ho!

October 19th, 2012

The A Word

Autism. I’ve studiously avoided the word for years; from about a year and a half to two years old, it’s been on my mind for Danny, but we never made it official. For a while, there was a bit of “maybe it’s just…” going on. Maybe it’s just his hearing loss. Maybe it’s just out parenting early in life because we never knew how well he heard or understood. Maybe it’s just something he’ll outgrow.

I think many parents think these things.

The fact is, it’s a reality for Danny and our family. We recently met with a neurologist who isn’t a big fan of the diagnosis, but he said that most professionals would agree that he’s got it. The fact I’d run into a while ago online, one the neurologist reiterated, is that autism rates are higher than average among CMV kids. At its core, it may not be the same autism as those kids born with it with no trauma or spurring factor, but the results are the same…or as “the same” as any two kids with autism are.

It’s so broad that it really doesn’t explain much.

A part of me wondered if I would react at all when a professional finally (sort of) agreed with our suspicion, confirmed it and made it real. I didn’t. It doesn’t change anything, except I no longer have to dance around it. No more “well, he has autistic tendencies” or “we think he may have autism,” he just has it. It’s no shock; in a way, I’ve known it for years.

I’m still not one of those autism moms that is lovey about it Read the rest of this entry »

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October 8th, 2012

Video Games

“I noticed, on some games, that there are no lines. But then in Daddy’s game – you remember Daddy’s game? Where there was the guy with the green hand? Well, Daddy just kept fighting him and taking away his life, and then – kablooey! – he just took away a lot of his life, but not all of his life… He just had this much life left. But Daddy had lots more life left, until the guy kept healing himself and healing himself. Daddy should have been able to heal himself too, but he couldn’t. Well, that game had lines, but some games don’t.”

Let’s Hear it For the Boys! hop :)

September 22nd, 2012

Baby Favorites: Stacking Cups

We’ve had the same set of stacking cups forever. I have no idea exactly when we got them or where we got them; they are just a part of the decor, moving around occasionally from bedroom to bathroom to living room and, heck, sometimes the car. Now that Andrew is able to (mostly) sit up, I brought them out and let him go to town.

The first thing I always like to do when I have a new toy is to just kind of put it out there and see what happens. I’ve learned a lot of structured play ideas over the years, but I have a great appreciation for the organic. (Plus, what better way to get 10 minutes of time to fold laundry, or eat lunch, or sit and read than to toss a new toy at a kid and say, “Here! Have at it!”)

I know that, when I first got the cups, I was mystified by them. I knew how to make a tower with them, but baby Eric couldn’t do that. So now, enlightened as I am in baby play, here’s how Andrew and I roll:
Read the rest of this entry »

September 14th, 2012

Not Quite Bento Box Lunches

Eric doesn’t like buying lunch at school. Maybe he’s a weird kid, I don’t know, but unless it’s something super awesome – like breakfast for lunch day where they have french toast sticks, or his ultimate favorite cheese pizza – he’d rather take a lunch. While I don’t mind the selection at our school’s cafeteria, I don’t mind that at all! It has, however, left me to get a little…creative with lunches. I don’t mind sandwiches, and do them a lot (using either a dinosaur or star shaped sandwich cutter), I like to give him a bit of variety, too!

With the start of school, I’ve seen a lot of people asking what others do for school lunches. Some people put together these incredibly complex, amazing looking, fancy bento lunches. Those are really neat, and quite frankly, not me. They aren’t my kid either; he is a slow eater, and if I packed something like a lot of the bento lunch blogs do, he’d only eat about 1/3 of it.

So, like many things, I take a wicked awesome idea from the Internet and…fake it. I bought a few Ziploc divided containers at Target (they now have neat Rubbermaid ones too!), and they were way less expensive than the custom bento lunch box kits out there. I also have just a few sandwich containers, and those work fine too now that Eric no longer minds his food mixing. They also fit better into his lunch box this year, since we found a more square-ish one than the rectangular one of last year. Here are a few lunches I throw together!

Eric LOVES Lunchables. But, unless you catch them on sale Read the rest of this entry »

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