Posts Tagged ‘aspergers’

Asperger’s Syndrome and Kennedy Krieger Institute

Friday, June 24th, 2011 by by

On June 2nd, we spent the day with a NeuroPsychologist at Kennedy Krieger Institute.   KKI is an internationally recognized institution which helps children with developmental disabilities.  They have a high focus on brain, spinal cord, and musculoskeletal related disorders.  We have been there a couple times before but have not met with this department.  This time, we were sent over to have Haven evaluated for Asperger’s Syndrome – an autism spectrum syndrome.  When we first started to try to diagnose Haven in 2006, we started with this syndrome (along with Prader-Willi Syndrome), but we were told this was not her problem – it was a problem with the parents.

Asperger’s Syndrome is an autism spectrum disorder.  Asperger’s Syndrome is known for significant difficulties in social interaction, along with restricted and repetitive patterns of behavior and interests. Although not required for diagnosis, physical clumsiness and atypical use of language are usually part of the disorder.

Haven worked with the doctor for over 6 hours.  (more…)


Laying it all out

Monday, June 20th, 2011 by by

I am the mother of a child with Aspergers and a Mood Disorder Not Otherwise Specified (NOS).
I have hesitated to post anything about this. Thus far, I have only shared this with family (so they can have medical history for their children) and close close friends. I have this rule where I don’t post anything negative about my kids or my husband, even in frustration. I didn’t want to post this because I was afraid it was painting my child in a negative light. Then I realized – I am treating this just like I fear so many others will treat him once they learn that he is different. It’s not negative, it’s nothing to be ashamed of, and I need to stop treating him as if something is “wrong” and accept that this is who he is.

I always knew Anthony was different. From the time he was born, something was just abnormal. He never cried. I’m not saying he hardly cried. He literally didn’t cry for the first time until he was three weeks old. We weren’t sure he COULD cry until then. Even as a newborn, he wasn’t a fan of being held or cuddled. He was much more content being by himself. I remember wishing so hard when I was pregnant with Anastasia for a child who enjoyed being cuddled (and I surely got that with her!).

Around his first birthday, we started noticing other things. He would bang his head as hard as he could anytime he got upset. If we restrained him, he’d bang his head on US until we let him go, and then he’d find the hardest surface and bang his head over and over until he felt better. His forehead was constantly bruised, and I would tell his pediatrician, who at one point recommended he be tested for Autism. The psychologist only sat with him once, declared he was too high functioning, and dismissed us.

Around this time, my other friends’ children began side playing. Playing along side another toddler, not necessarily playing with them – but they would happily play with the same toy or in the same area. (more…)