Posts Tagged ‘cochlear implant’

Being Atypical

Thursday, April 30th, 2009 by by

The Internet is a wonderful and terrible place sometimes. One of the things I have leaned on through our entire journey with hearing loss have been the other blogs, the other kids and parents who have gone and are going down the same road we are. I share their journeys, worry through cochlear implant surgeries for babies who I’ve never met, celebrate milestones.

And I sit back, realizing how different our journey is from all of theirs.

We’re going through the same steps, of course, but at the same time Danny is so different. These kids are signing and showing hearing recognition less than 2 months post-activation, babbling after 3 months. They are super stars! And I get so excited for them, but then I look at Danny and have to remind myself that it’s not a race.

It’s a marathon, not a sprint, and in the end most everyone will be a winner. And Danny is a super star himself, maybe not on the vocalizing side, but really to have him hearing at the level he is, and giving the responses he is, is pretty incredible.

With Danny’s latest IFSP meeting coming up, and his impending occupational therapy evaluation, it’s more obvious than usual that Danny isn’t your typical cochlear implant baby. His continued battle against solid food is now being referred to by some as an oral sensory texture … thing. A pit in my stomach is dreading the evaluation, because no matter how much I know Danny isn’t typical, I hate hearing it laid out on the table.

I wonder what our journey would be like if he didn’t have to work so hard (more…)