Posts Tagged ‘hypoglycemia’

Catch up

Saturday, May 7th, 2011 by by

A lot has happened since my last post.  Ava has been inpatient twice in the last month for cyclic fever and hypoglycemia.  She also had to fast for an echo (she’s been having tachycardia), which didn’t go well.  She can’t fast with her blood sugar plummeting.  Pedialyte doesn’t help, it doesn’t have enough sugar in it to maintain glucose levels.  We checked into cardiology already low, so the cardiologist did the echo himself without sedation, and she was sent to the ED for critical labs and a glucose of 38. She has to be followed by the cardiomyopothy clinic.

Fast forward 2 weeks… She was discharged last night and will go back in on Tuesday for fluids and port placement on Wednesday. She can’t fast for surgery, so fluids are needed.  She doesn’t have access anymore.  It literally takes hours to get an iv in, and it’s very painful for her.  They have to dig, try multiple places, etc…  A port will help with this.



Saturday, July 31st, 2010 by by

We just got home from another stay at Children’s.  Ava’s blood glucose levels were 41, so she was admitted for a few days.  Genetics says this is how Mito effects some children - dysmotility and hypoglycemia.  She’s having the big muscle biopsy at the same time as her gtube placement.  We’ll find out more when the results of that biopsy are back in a few months – it takes 2+ months to get results!