Lady Moonlight
Feb 10 2009, 04:33 AM
So, I thought reading this book would be less about vaccines and more about the mothers who care for their children. And to some degree it is, but I'm kind of disappointed. I don't actually feel qualified to read this book. Freddy doesn't have all the many many health issues that some of these children have, nor was his autism a direct onset of any vax that I'm aware of. So, I'm sort of at a loss as to what to feel as I'm reading this.
Who has read this book and what did you think of it? I'm not trying to start any debates. I'm just curious. I think it's great that all these moms (and dads) are working towards helping their children. But I don't feel the urge to 'join the fight' if you want to put it that way. Does this make me a bad mom? Should I be working harder towards trying to 'fix' Freddy?
Sweater Cannons
Feb 10 2009, 08:45 AM
I finally read this book a couple of weeks ago. While I disagree with McCarthy in some areas, I feel like this book brought biomedical treatments and the physical symptoms of autism into the foreground. It really isn't about fixing these kids, but about giving them a better quality of life by helping heal the physical symptoms, which also often improves speech, eye contact and behavioral issues. I personally haven't done much biomedical because I just don't feel that ds has enough issues to warrant it, but the couple of things we did do definitely heped; after a few weeks of epsom salt baths (totally innocuous, easy and inexpensive) his eyes uncrossed and he started asking questions instead of just pointing and saying "That" A month later he started having full conversations. After eliminating casein and starting digestive enzymes his stomach is a less bloated and he can tolerate more foods. I figure these are generally harmless treatments to try, so why not? Its better than doing nothing as his GI problems just get worse, or just treating the symptoms without addressing the root cause. And that's the whole idea of the book: other autism parents sharing what they tried and what did or didn't work. So much of the medical community refuses to acknowledge the success of these treatments and many of us cannot afford a DAN! doctor, so at this point parents helping parents is the only other way to help our kids.
picklesmama
Feb 10 2009, 10:42 AM
I haven't read it because she bugs the heck out of me in her interviews, and I don't buy into what she has to say in them. If Angus had any of the physical issues I might be more interested, but he doesn't.
christina29
Feb 10 2009, 12:29 PM
I would like to read it. She bothers me also. Although I think she is rather extreme at times I have alot of respect for fighting so much for her son. I know I would love to try going the biomedical route and see a DAN dr but there is no way we could afford it.
picklesmama
Feb 10 2009, 01:16 PM
It might be a good read even if you don't agree with her on all things - her comedy stuff (Belly Laughs) is entertaining. Likely a very different tone than Mother Warriors though!
Lady Moonlight
Feb 11 2009, 03:04 PM
Cori, I think it's great that some of the simple treatments are making huge differences. And you're right, I think that's what the book was intended for. And that's exactly why I don't feel qualified to read this. Freddy doesn't have the drastic physical problems like some other kids.
sillybean
Feb 11 2009, 07:33 PM
I haven't read it but like you, I don't feel that vax were related in ANY way shape or form to Alexander's autism. Nor does he seem to have those physical symptoms. I don't doubt that this may help some people, I just don't feel it is for us. I saw the red flags in him from the first weeks he was born and since having Nicolette that just verifies it more.
3girls1boy
Feb 12 2009, 09:12 AM
I have not and probably will not read it! I have nothing good to say about anything she has said, "her son is cured" makes me want to PUKE!!! I am sorry to say it. I love my children and I do everything in my power to help them get through everything and live a ASD Normal life. I have no intrest in going the other routes that there are GFCF diets, biomed, ect.... Therapies and Us pushing has worked wonderful for our daughter. I love my kids and I am happy with who they are. I dont think that makes me a bad parent or anyone else who feels the same way about their child. I do want to read a book called all cats have Aspergers though I have heard great things about it even though neither or my children are that High up on the spectrum!
Lady Moonlight
Feb 12 2009, 10:54 AM
All Cats Have Asperger's? Sounds interesting... I'll go check it out.
picklesmama
Feb 12 2009, 11:06 AM
All Cat's Have Asperger's

Love it. Thining about my cats, I'm inclined to agree
Sweater Cannons
Feb 12 2009, 11:42 AM
Personally, I wouldn't have bothered with the biomed if ABA therapy had been enough for ds. Once he started therapy he became increasingly agressive; I dreaded when he came home in the afteroon because I would have to lock dd and I in the bedroom until dh got home because it was to the point where we were being physically abused. There was no indication of anything being wrong at school (I even made some unannounced visits), he just became a different. The first thing we tried was the Feingold Program, which helped us uncover a whole laundry-list of food sensitivities that were causing the aggression. After that we started the epsom salt baths and casein-free diet. Those biomed approaches have helped him be able to make progress with his ABA, and have also helped him be a happy kid at school and at home.
puglover
Feb 16 2009, 12:02 AM
My sister who is an occupational therapist has listened to Jenny speak and was very impressed. I loved her books and my son has made huge strides with Bio-medical and other therapies. It has been a struggle and I have been lucky, my step brother paved the way with their autistic son and I have a special education teacher and an occupational therapist in the family. I have never regreted our choice for threatment. My son has not had a seizure in a year and not even so much as a cold this winter. He was a very sick little boy and has come along way. Today he told me as he ran by "Daddies chasing me" and laughed. He is 2 and chase is his favorite game. In September he maybe said 30 words and was not combining them. Anyway I guess its obvious how I feel.
Tammyjh
Mar 4 2009, 02:12 AM
QUOTE(Lady Moonlight @ Feb 12 2009, 10:54 AM)

All Cats Have Asperger's? Sounds interesting... I'll go check it out.
Yes, thats a cute book. I bought it for my daughter. One of her dx's is Asperger's and she loves cats so I bought the book. Its a picture book with captions underneath the photo's.
Lady Moonlight
Mar 4 2009, 01:23 PM
I have to say that after finishing the book, I really enjoyed it. While I still feel biomed treatments aren't for us (at least not at this time) I liked reading the book and am now reading Louder than Words. I can't say it gives me hope per say, but I definitely have a more positive outlook.
christina29
Mar 4 2009, 09:39 PM
I just finished it to and I loved it. The last warrior mom story made me cry so much. I heart breaks for that family. I loved louder then words. I do not think people realize the hell Jenny went through her son Evan. I cried alot reading that book.
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