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November 22nd, 2008, 06:16 PM
Join Date: Oct 2004
Location: *queen city* of North Carolina
I'm Rachel, mommy to Hailey. She is two and half years old and we are monitoring aortic stenosis. We have our next appt in a few weeks (need to schedule it still).
When she had her first doctor appt at the hospital they heard a lot of noise and ordered an EKG and Echo right away. So we found out when she was about 18 hours old. We have been monitoring it since. We were told that she will probably need surgery when she is in her 20s. I'm hoping she wont, or if she does they will be able to do a less invasive procedure. She has all 3 leaflets in her valve - so my hope is technology will increase and somehow allow that 3rd leaflet to work. Either way, just looking at her you'd never guess - typical 2 year old. So, I guess thats got to be a good thing right? If she didn't have energy and such they would probably be very concerned.
Proud Mommy To My Princess (5)
Watching over us -- August 2005, March 2010, October 2010, July 2011
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