New to FTT and looking for other hypothyroid babies
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October 4th, 2009, 09:49 AM
Join Date: Sep 2006
Hi my name is Brandy and my daughter was diagnosed with hypothyroidism at 6 months old and she has recently been diagnosed with FTT. She will be 1 year old Oct 19 and she weighs 15.5lbs and is 25 inches long. She has never stopped gaining weight, although it has been slow, she has stopped growing in height, she has been 25 in since May. We do see a endocrinologist to help monitor her thyroid and we were recently tested for growth hormone deficiency which came back that she was deficient with Somatomedin C, but we are still doing more testing before she is diagnosed. We have met with a genetisist who doesnt feel like this is a syndrome and we are having MRI Friday to help rule out or determine obvious malformations, tumors, etc.
I have been reading a few posts and it seems that yall are a wealth of knowledge and resources. Does anyone else here have a hypoT baby? It has been hard for me to find anyone who understands what exactly we have been going through!
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