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August 10th, 2010, 04:52 PM
Join Date: Apr 2005
Location: Anaheim, CA
losing Joey. My #1 biggest fear is losing him to this stupid disease, transplant, or related complications.
Secondary cancer is another... or histio flaring again. HLH is another.
Also I am terrified we will find this is genetic and my other kids will get it too.
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