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February 21st, 2011, 03:59 PM
Join Date: Sep 2008
This is Carrie. She is a mess
She's 3.5 and special needs. Long story short we're on our 4th diagnosis (all others were one at a time deemed misdiagnoses). They say she's got slow brain waves. Hers right now are the rate that her little sisters are. There is no way to tell how far behind she'll be but they say she'll definitely always be behind. She could be a couple years behind forever, or 2/3 her age behind, or there is even a chance she won't progress much further than she is. a few months ago they told us she'd likely never walk or talk, but 4 months later she's WALKING! She's my beautiful little miracle. They have no idea why she's affected by this (it's typically associated with FAS or CP, which extensive testing has ruled out both).
She's 3.5 and just learned to walk, she can only say "mama", she has mild sensory problems and is behind in both fine and gross motor skills. She's a happy and sweet girl and I'm lucky to have her
(That's a strawberry hemangioma on her arm, she's also got one on her head, basically it's just a birthmark)
"Disability is not a brave struggle or ‘courage in the face of adversity.’ Disability is an art. It’s an ingenious way to live."
Last edited by C&K'sMama; February 22nd, 2011 at
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