Hi ladies! Not sure if many of you remember me, but I was posting regularly for a while about a year ago, then we moved and life got crazy busy and I haven't been on JM as much as I used to be other than checking into my
PR once a day or so.
My daughter Madalyn is almost 3 and she's doing so great since we relocated to Mississippi. As scarce as the resources are down here, she's really thriving. We have a wonderful team of therapists, 2 from the state EI and 1 private ABA therapist. She's due to transition into the schools in another 8 weeks or so, but I'm considering not sending her as our school district is atrocious with the early services kids (even my daughter's developmental ped says to avoid it if I can) and I think we could do better going to private speech & OT. I still haven't decided yet. We did meet to do her IEP and they were so scatterbrained and not on the ball with things that it left a bad taste in my mouth.
I have thrown myself into getting involved in a local autism support group, but I'm thinking about backing off from it because I don't agree with how the group leader runs things. It's sad too because the group could live up to enormous potential with the right people running it but unfortunately the group leaders are not very pro-active and are very flaky. Like this Saturday, they had a booth at a disability awareness event that was going to draw a huge crowd - they got the booth for free because there was no charge for them if occupied by a not-for-profit group and we have 3 big fundraisers coming up that we essentially could have gotten 4 hours of free advertising for. But the group leader canceled the booth because she decided to take off tomorrow from work and she would make it up on Saturday instead
I have no idea how that logically makes sense as her only explanation was "I don't like working on Fridays" but it's about the umpteenth example of her flaking out on the group....anyway, I won't bore you with the stories from that, but it does make me really frustrated. I enjoy the support group and the resources I've gained from it, but with lazy leadership, it ends up being our kids that suffer the most. And that is heartbreaking.
Anyway, just thought I would stop by and say hi and try to rejoin the board as best I can. We're heading to Disney World for a week and when we get back I hope to post more!