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Welcome to the FTT board. I've been MIA this week, but I'm back now. I'm Hope, my FTT DD, Ava, is g-tube fed for most of her nutrition due to her Mitochondrial disease.
I love that he's seeing a feeding team. A multidisciplinary approach helps. I would ask to try periactin to stimulate his appetite. I know many kids who've found success with it. I know how hard it is to look for answers and not find them all. ((Hugs))
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Thank you, tasha_mae, for my siggy!
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