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July 10th, 2011, 02:56 PM
Join Date: Nov 2006
That's a tricky one...I have always had fatigue issues since I was a teenager, so I don't know if I had this then and it just wasn't diagnosed or not. If that is the case, then it was a good 15 years.
If I go from when I got terrible ulcers on my fingers until a diagnosis of CREST, that would be about 8 months or so. Then I was diagnosed with Sjogren's about 4 months after that. But then the rhematologist finally settled on a diagnosis of primary Sjogren's instead of CREST (although I'm wondering if I do have CREST as well after all), which was about 15 or so months from the ulcers.
Oh, and I was diagnosed with Hashimoto's thyroiditis, which is auto-immune, before I even had any symptoms for that, about 4 1/2 years ago.
So I guess I really can't say how long it took to diagnose in my case, or even if I'm fully diagnosed yet, because it wasn't so clear cut.
That didn't really answer your question, did it?
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