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January 21st, 2012, 09:27 PM
Mega Super Mommy
Join Date: Jun 2007
His regular poop schedule is no less than 3 times per day and he has not wavered for that unless it is more often (usually when he is sick and/or on an antibiotic). He has had 8 or 9 endoscopies and 2 colonoscopies. They have found ulcers, lymphonodular hyperplasia (enlarged lymph nodes throughout his large intestine) gastritis, esophogities, reflux, and bile reflux. All biopsies were normal except for these things as well. No EoE or any other Eosinophilic issues... :/ The GI's are completely stumped at this point. He sees the head GI at the group we are with Wednesday so hopefully we will find something then... He is allergic to eggs, milk, soy, tomato, carrot, red 40, cinnamon, tree nuts, strawberry, rice, coconut, lamb, apple, chicken, and beef and the last two were just cut out as a result of testing and possibly causing the stomach pain but it hasn't eradicated it completely...
They also checked for "signs of delayed gastric emptying" whatever that would be during the endoscopies (at least the last 2) but didn't see anything suggesting it. He has been taking pills for over a year due to the amount of medication he has to take daily for all his issues... He has several specialists working to try to figure things out but we will hopefully get at least an idea of where to go from here on Wednesday...
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