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May 23rd, 2005, 05:38 AM
Join Date: Feb 2004
How frustrating. I know that I don't have a big diagnosis for Brandon as of yet. Other than he has Optic Nerve Hypoplasia, Nystagmus and Hypotonia. I have been frustrated with doctors as well. He has seen an endo, a neurologist, opthalmologist, and his regular pediatrician. Although, honestly at this point he is not technically FTT but he is still very small for his age and still does not eat very well.
How tall is your dd? Is she growing in length or is she small in length too? Does she eat any solids yet?
I am glad to have you on the board. I hope we can be a support system for you and your little one.
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