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-   -   Any thoughts on SPD?? (http://www.justmommies.com/forums/f1172-children-developmental-delays-and-disorders/2611653-any-thoughts-spd.html)

Ash22 January 5th, 2013 08:56 AM

Any thoughts on SPD??
 
Hey. I have a son who will be 3 in a couple weeks. We have just started his developmental assessment. We are going to see an OT on Tuesday for an assessment. I talked to them a little about my concerns about SPD. They gave me the SPM - Preschool form to fill out and bring home. I had a peek inside and on a separate sheet of paper I filled out the numbers and looked up online how to calculate his score. I have no patience. lol Turns out he is in the 99%tile for pretty much everything. I knew he had a lot of sensory issues but I didn't think he would score that high....

Any thoughts?? Did you find out exactly what percentile your child falls into as far as sensory issues?:confused:


They also recommended that when he has his fits, to take him to his room and let him boil off on his own in a safe environment. So just a mattress and his blankies. Nothing else in the room. Feels so mean but they say its alright.

There is just sooo much going on with him. Its so overwhelming for me.

TreeTog January 5th, 2013 04:40 PM

Re: Any thoughts on SPD??
 
Ryan has SPD.
An empty room is boring to us, but to a child with SPD, it is calming. There is nothing to stimulate the senses and he can regulate himself. My kids have a playroom and a seperate bedroom. Ryan uses the bedroom to calm down when things are too much. I don't remember all of Ryan's scores, but I can look them up.

Leslie

Ash22 January 5th, 2013 05:52 PM

Re: Any thoughts on SPD??
 
Really? Even with the "empty" room he goes "nuts". all he has is the mattress and pillow n blankets. he runs around, crashes into the walls n door. falls down.screams. then he trys to rip up the mattress n things....


I would be interested to see where the kids line up as far as scoring. just to get a general idea of where we stand :)

Hazel January 5th, 2013 07:22 PM

Re: Any thoughts on SPD??
 
I don't know my oldest's score but his SPD is sensory seeking--he needs stimulation to calm down. He has to have sensory breaks at school--spinning, jumping, tactile experiences such as shaving cream/play doh/textures/etc.

TreeTog January 5th, 2013 09:41 PM

Re: Any thoughts on SPD??
 
I will look through Ryan's papers tomorrow. I have a binder full of reports and test scores.

Leslie

Ash22 January 5th, 2013 10:51 PM

Re: Any thoughts on SPD??
 
Yeah. I wonder if one child can have multiple sensory issues?? In some area he seems sensory seeking, some things seem like he is hypo others hyper.


But he is definetly the one who needs the stimulation.. he is sooo hyper, crashing, bumping, jumping, licking, pulling... he is everywhere and all over the place. lol


a handful!!!

TreeTog January 6th, 2013 08:25 AM

Re: Any thoughts on SPD??
 
OT tests and findings for Ryan -

HELP - Fine Motor skills at the level of a 3yo.

VMI - Difficulty following directions to do test

PEDI - below normative standard on self care and mobility

Sensory Profile -

DD - Definite Difference
TP - Typical Performance
PD - Probable Difference

Sensory Seeking Raw Score - 38 Definite Difference
Emotionally reactive Raw score - 41 definite difference
low endurance/tone Raw score - 35 DD
Oral sensitivity raw score - 29 Probable difference
Inattention/Distractibility - 16 DD
Poor registration - 26 DD
Sensory Sensitivity - 14 PD
Sedentary Raw score - 15 Typical Performance

Sensory Processing -
Auditory Processing - 21 DD
Visual processing - 25 DD
Vestibular Processing - 27 DD
Touch Processing - 57 DD
Multisensory processing - 23 DD
Oral Sensory Processing - 37 DD

Modulation -
Sensory processing related to endurance/tone - 35 DD
Body Position and movement - 31 DD
Modulation of movement affecting Activity level - 23 TP
Sensory input affecting emotional responses - 13 DD
Visual Input affecting emotional response and activity level - 13 PD

A child can be both a seeker and an avoider, Ryan is. He seeks rocking and rolling on floors, but avoids being put upside down and hates being touched from behind with no notice.

I also have test scores and evals from the school and ST, if you want to look at those.

Leslie

Ash22 January 6th, 2013 03:17 PM

Re: Any thoughts on SPD??
 
Wow. As soon as I get the full list Ill share too. We go Tuesday afternoon.


So far, I just did the home form and checked out the scale myself. :P

I have no patience for these things. I want to know as much as I can. thoughts on equipment like weighted blankets, etc ??

I think i figured out why he doesnt nap on his own very well. I usually have to put him into my bed with the blankets wrapped and him snuggled in. he likes the weight of me laying close to him. I am curious if a weighted blanket would help him sleep...


Any

Carwen*Angel January 9th, 2013 09:44 AM

Re: Any thoughts on SPD??
 
I keep wondering about a weighted blanket for my son but those things are so very expensive and our work/finance situation isn't great right now.

I don't know too much about SPD but from what I do know my son has some symptoms of it. They have never assessed him for it (yet). I hope having the diagnosis helps rather than hinders in your case!

Ash22 January 9th, 2013 04:49 PM

Re: Any thoughts on SPD??
 
THANKS EVERYONE. :)

we finished all of the assessments. Now I just have to go back on Jan 22 for the reports and diagnosis stuff. The OT agrees that a huge part of his issues stem from Sensory Processing. She still has to total his score so we know the severity.

So still waiting technically. lol


I appreciate everyone's feed back.

I was looking at weighted blankets.. might be able to get one used or order one online for about $60. I am also going to be able to get special funding by the seems of it. That's Canada though. Not sure if you guys get the same sort of support in other parts of the world.

Ash22 January 9th, 2013 04:49 PM

Re: Any thoughts on SPD??
 
THANKS EVERYONE. :)

we finished all of the assessments. Now I just have to go back on Jan 22 for the reports and diagnosis stuff. The OT agrees that a huge part of his issues stem from Sensory Processing. She still has to total his score so we know the severity.

So still waiting technically. lol


I appreciate everyone's feed back.

I was looking at weighted blankets.. might be able to get one used or order one online for about $60. I am also going to be able to get special funding by the seems of it. That's Canada though. Not sure if you guys get the same sort of support in other parts of the world.


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