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Any moms-to-be with congenital heart disease?


Forum: High Risk Pregnancy

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  #1  
September 20th, 2008, 08:46 AM
Regular
Join Date: Sep 2008
Posts: 2
Hi, I am new here. I just found out that I am pregnant (with my first) and will be due in May. I was born with aortic stenosis and coarctation of the aorta and had open heart surgery as a two-week old infant. Throughout my life, I have been monitored by cardiologists and my condition has been stable. My condition doesn't have any noticeable effects on my day-to-day life. The only thing I am not allowed to do is heavy weight-lifting. In the past few years, I have had different cardiologists each time I visit, because they keep moving away (I go about once a year). I have been married for 4 years, and about 3 years ago, my husband and I began inquiring about pregnancy and how/if my heart would tolerate it. I have been told that my heart should tolerate the pregnancy, but I will need to be high risk and the baby and I will both need frequent echo cardiograms, in addition, my baby would only have a 3% chance of having a congenital heart defect (it is 1% in normal moms). Three years later, I am finally pregnant. I now am feeling selfish and guilty about the whole thing, I am really worried about my condition and its implications for the pregnancy. I don't see my cardiologist until October 20th, so for now I am just dealing with all of this in my head. I have scoured the internet, looking for other moms who may be/have been in a similar situation, but can't find anything. Is there anyone who is dealing with a similar situation? I so want to be a mom, I am now in shock, however, that it is actually happening. I want so much for my baby to be healthy, I am just full of worry.

My first prenatal exam at my OB was on Thursday, and it was horrible. I was put with a HORRIBLE doctor that I had never met before. He had very poor bedside manner. My husband was with me and he pulled a curtain around him so that he couldn't see when he did the vaginal exam. He didn't even give me the opportunity to ask any questions, he didn't even MENTION prescribing prenatals, didn't give any advice on exercise or eating habits, nothing. My next appointment isn't until October 30th for my 1st trimester screening. Does anyone know if it is normal to be high-risk and only be seen this often? I know I am still very early in the pregnancy..The doc does know about my condition and did categorize me as "high-risk." Just curious....

Sorry to blab, but it feels good to vent.
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  #2  
September 20th, 2008, 09:12 AM
BensMom's Avatar Ephesians 4:29
Join Date: Apr 2005
Location: The Lonestar State
Posts: 50,214
You definitely need to find another ob!! That's completely uncalled for, and actually, I won't let any male doctor examine me unless dh or a woman is in the room with me!

I don't know if there's anyone currently on this forum with a heart condition, but I know there are several scattered throughout the site. To my knowledge, all have had successful pregnancies. I have a good friend who had open heart surgery as a child, and she also had a successful pregnancy. I think as long as you find a doctor who understands you, you'll be fine. Obviously the one you saw won't work!

How often you're seen early in pg really depends on what your condition is, so I can't comment on that. I was seen several times, but it was because I was on fertility meds, had bleeding, etc. It's typical not to have your first checkup until 12 weeks, though. In a normal pg, you'll be seen every 4 weeks until 32 wks. Then every 2 weeks until 36. Then every week until delivery. Your specific condition will be monitored more often by specialists, though ... especially if you develop something like high blood pressure.
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  #3  
September 20th, 2008, 01:24 PM
Cindermella's Avatar Freakin Know it all
Join Date: Aug 2005
Location: Canada
Posts: 13,606
In a month is normal for a first trimester schedual high risk or not. But if I where you I would trade up in the doctor department. There are plenty of online rate my doctor sites. Find one and check in your area for doctors that are patient recomended.

Welcome to the high risk board.
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