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kidney stone? Crappy doctor? need advice :(


Forum: High Risk Pregnancy

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  #1  
December 15th, 2009, 09:46 PM
fibigrey's Avatar Mega Super Mommy
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Sorry its so long.. I need advice! I don't know what to do!! But I am concerned, and my doctor is giving me NO ANSWERS! xposted.

I am 23 weeks pregnant, and have been having ongoing pain throughout my pregnancy. My doctor, I believe thought I was crazy. I was diagnosed with 2 UTI's, the last one causing me extreme back pain. The urgent care doctor I saw told me to be aware of kidney stones, and if the back pain didn't get better to check with my doctor.

I have had one kidney stone previously, a few years ago, and my symptoms were abdominal pain for over a month and severe pain after sex. I was misdiagnosed as having pelvic inflammatory disease. A few days after that, the stone started to move, and got caught in my ureter, THAT is when the intense pain hit. Like, "OMG IM DYING" pain. The stone however, was 10mm big, and too big to pass, and was ultimately stuck in my ureter, I had to get it surgercally removed. Mind you that I had abdominal pain for over a month, without accompanying back pain, or at least not back pain I found unusual.

So I've been having ALOT of abdominal pain in this pregnancy. The doctor just kept telling me "its probably ligament pain, or it could be contractions." I am high-risk, on bed rest, and have a cerclage in. This past week had been AWFUL for me..worse abdominal pain, and back cramps. I must've called my doctor's office 4 times, and went in to get checked out. At this appointment I requested a kidney ultrasound.. I refuse to believe that this pain is for no reason, with or without cerclage, I just shouldn't be in this much pain. I know what ligament pain is, and I know when I have a contraction...If they're not going to TRY to figure out whats wrong with me, I am going to suggest something! I have had a gut feeling that this has been my kidneys.

Then a few nights ago I end up at the hospital with visible blood in my urine and severe back/abdominal pain. I told the nurse when I got there I didn't think it was the baby, I thought it was my kidneys.. I had an ultrasound of baby, kidneys, and bladder.. The only thing they could "definitly" find was hydronephrosis, which the nurse said is common in pregnancy.

The nurse this whole time is pushing "ligament pain" on me, and I told my husband if she said "ligament pain" one more time to me, I was going to smack her. AND my doctor is STILL pushing me to take vistril, and I DO NOT WANT TO. I believe he was pushing the nurse to ask me (she seriously asked me about 5 times if I was sure I didn't want to take it) because he thinks I am overly anxious and making up my pain! I don't like how the medication makes me feel, it makes me feel like I drank half a bottle of wine.. At first the nurse was saying "oh well, maybe it will help your ureters relax if it is a kidney stone, and you will be able to pass one easier." Then the last time she asked me she said "so, it doesn't agree with you? what did you take for anxiety before?" I yelled at her "IM NOT ANXIOUS!" I mean, really?! You guys know how belittled I feel having my concerns down-played to anxiety? I know they can't see my pain, but I was PISSING BLOOD! That is objective enough for me.

My doctor never even came back to talk to me. The nurse gave me directions of "go home, use tylenol and hot packs for pain, don't do anything exerting, drink plenty of fluids, and strain urine for possible kidney stones" My doctor was really going to send me home with a possible kidney stone without pain medication (mind you he gave me PERCOCET for my cerclage, which I didn't even need, but a possible kidney stone he expected me to just go home and be okay with?! I had to argue with the nurse that if they sent me home and the stone started to move, and REAL pain hit, I would be right back in there screaming in pain. I was balling like a baby at this point, because I had only 2 hours of sleep, and they were doing exactly what I didn't want them to do,. shrug me off! I did win and get my "just in case I feel like I might die from a kidney stone" pain medication..

They couldn't even give me a definite diagnosis because the ultrasound didn't show stones, which is common, someone needs a CT scan to show most stones.

Here is my problem.. Shouldn't my doctor have tried to talk to me more in depth about this? tell me what to expect? Shouldn't he listen to my past history? I feel like he doesn't care!!! He is THE ONLY high-risk specialist in this area, he did my cerclage surgery. He has a good reputation, but he has a really, very horrible bed-side manner.. He is the type of doctor that gets annoyed with the more questions you ask... I trust him with the health of my baby, but I am really starting to be concerned about his lack of concern for me!! The stress, the pain is going to get to me!

I was reading up on kidney stones in pregnancy and found this source: Kidney Stones during Pregnancy | Articles | Pregnancy Today

It said that complications can arise from stones including kidney infections, and blockages.. I am so worried about a blockage since I did have one the first time, and there ARE treatments that are available to pregnant women.. He never even talked to me about any of this..

I don't know what to do! I don't know if I should get a second opinion of a different doctor at a different hospital, or if I should just wait this out? I AM understanding of the fact that testing AND treatment is very limited for pregnant women.. I am NOT understanding of the fact that my doctor doesn't seem to want to talk to me about this.. I really feel like he is dismissing me as an over-worrier.. He's told me at appointments before to "not be so anxious" or "do you need something else to be anxious about?" I think I am just weird and my body doesn't react to the stones like someone else.. For most people its SEVERE back pain and the stone is found..for me it has to linger for a few months :/

What would you guys do? and better yet, have any of you HAD kidney stones? Its fairly common in pregnancy..What did your doctor do for you? Do you guys think I am overly worrying about this and that I should just wait it out? Or am I justified in at least wanting my doctor to give me answers?!
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  #2  
December 16th, 2009, 07:20 PM
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HI there, I dont post to often but had to after reading your post.. I am a surgical Assistant and work for a group of Drs, one of which is a urologist. I would STRONGLY suggest you make an appointment with a Urologist in your area ASAP. We have done Cystoscopys, Ureteroscopys, Stone Extractions on pregnant women in the past.. although we prefer the patient to pass the stone on their own by drinking a TON of fluids, sometimes the stone is just too big and the only way to get it out is by going in and either breaking it apart or grabing it with an instrument. If a stone is to large to pass on its own, it can cause major problems to your kidney, and that is just not good for anybody, pregnant or not!

Kidney stones SUCK. I get them every few years myself... to tell you the truth I would rather be in labor with no drugs EVERY DAY for the rest of my life then have to deal with a stone in my ureter!

BTW, You do not need your OB's permission to go in and see a urologist. They should have had one paged to see you while you were in the ER, or at least refered you to one! I would suggest, should your pain get any worse, Go back to the ER and DEMAND to see a urologist.
I know there are a few RN's out there.. wouldn't you all agree?
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  #3  
December 19th, 2009, 07:49 AM
mamabeeto3's Avatar Super Mommy
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I agree with JordansMomma. I have had kidney stones. My last pregnancy technically arose from a kidney stone. I had severe pain and it was discovered I had a stone. They sent me home with toradol and other pain meds. Well 10 days later the same pain - turns out it was the SAME stone. I didn't have pain all 10 days because the stone was not moving. And mine too was too big to pass. Mine was in my ureter. Yes, they did cat scans and x-rays of my abdominal area both times. The 2nd time they referred me to a urologist and sent me home with dilaudid. I had a urteroscopy on 6/21/06 and on 6/28/06 I got a BFP. DH and I had sex only ONCE during that time and I should NOT have been ovulating... none of it made sense, but God and fate had other plans for us. I had previously lost my son on 12/2/05 at 22.5 weeks - so to say I was hysterical was an UNDERSTATEMENT. I had surgery, anesthesia, multiple cat scans, x-rays, etc in that area all while baby was attaching and forming. I was closely monitored throughout my pregnancy by everyone since I still had a whole cluster of stones still there. Fortunately they did not act up. I have had multiple bouts with them since and had ESL. My son fortunately had no issues due to everything that occurred at the beginning of my pregnancy. And during my pg I did have other x-rays, and ct-scans, as well as prescribed pain relievers.

They did advise me and work together that if something occurred that they could successfully assist me with stones while pregnant.

I agree get to a urologist. The ER was negligent if they did NOT do a ct. That and x-rays are the way to determine if you have kidney stones, besides the blood in the urine.

Hope you are able to get this resolved.
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  #4  
December 19th, 2009, 09:01 AM
Mega Super Mommy
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When you say your Dr is the only high risk dr in the area, how big are you making your area? I drove an hour to get to my dr and hospital. And it definately sounds like you are being pushed off, which is not good in a high risk pg. This is a time when we need to be more supported not less!
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  #5  
December 19th, 2009, 11:00 AM
fibigrey's Avatar Mega Super Mommy
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I drive an hour to get to my doctor as well.. Any others I'd have to go over 2 hours away.
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  #6  
December 21st, 2009, 11:14 AM
bgenifer's Avatar Veteran
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I'm going to agree with Jordansmomma as well.

I had kidney stones with my first pregnancy. Didn't know until I was passing one and it put me into labor. Thankfully, I was able to pass mine. But they are definately no fun!
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