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Aortic Valve or Arch...


Forum: High Risk Pregnancy

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  #1  
April 12th, 2005, 11:33 AM
Mega Super Mommy
Join Date: Apr 2005
Location: Southeastern South Dakota
Posts: 4,389
Hi. I am so happy to have run across this site. Everyone seems so supportive. I have a lot of friends who are good listeners but many of them do not have children yet and are probably tired of talking about babies ALL THE TIME lol.

I have a 10 1/2 month old and am 33 weeks along with my second.

I am writing today because I have just been referred to a "at-risk" pregnancy doctor and wondering if anyone may have gone through the same thing or is going through it now....

We have had three ultrasounds. One to identify how far along we were. The 2nd was typical 20 week ultrasound. Due to baby's position, they were unable to see the spine. The ultrasound tech also left "Aortic Valve" or Aortic Arch" (not sure what they call it for sure) unchecked, meaning they did not see it. We had a 3rd US mainly to look at spine and doc was not concerned about the Aortic thingy, thinking it was just something they weren't able to see due to position as well. Well....we had a different US tech this time and she too did not see the Aortic Valve or Arch. The doctor said this is an uncommon thing but they like to make sure of these things. She has referred me to a special "at-risk" doctor. That is all the information my OB gave. Of course, at the time, I was a bit shocked and not sure what she was saying at first so didn't have any questions for her.
My hubby spoke to our family doc yesterday about it and he said it is not a laughing matter and could potentially be very serious. The baby is only in the 20th percentile too so it is very possible that they are not wrong about the heart defect, considering small babies and heart defects go hand in hand.

any thoughts? anyone been there?

thanks for taking time to read my lengthy post. man! I got on a roll ...sorry
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  #2  
April 12th, 2005, 12:27 PM
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Join Date: Mar 2005
Posts: 69
Hi! I had an "at risk" pregnancy with my twins (first pregnancy). Their 20 week ultrasound came back normal, but because I was carrying twins I had regular subsequent u/s. At 32 weeks the tech detected something abnormal in twin A's heart. I was sent immediately for an emergency visit with a perinatologist (OB/GYN for at risk pregnancies). She was first diagnosed with Hypoplastic Left Heart Syndrome, but a fetal cardiologist came down from Children's downtown to diagnose her. Thankfully, we got a "better" diagnosis of critical pulmonary stenosis. She was fine while in utero, but would have to have a ballon angioplasty the day after she was born. She was transferred to a different hospital within an hour of the birth, etc. She's had a couple different procedures, thankfully, no open heart surgery YET! (But could still be a possiblility as she gets older.) Today she lives a normal 2 year olds life with her twin sister.

I'm not real familiar with your particular diagnosis (missing Aortic arch?). Although I know a woman who's son, *I think* has that condition. He's had to have some open heart surgeries. I don't know what area of the country you live in, or if you live near a big city, but I would try to get a firm diagnosis. The perinatologist should be able to help with that. But remember my perinatologist (a very good doctor) was wrong. But they called in the specialists. You could ask about seeing a fetal diagnostic specialist in cardiology (I'm surprised they haven't suggested it, though.) Although, I live in Chicago, so thankfully there are these types of doctors around here. Ask about viability after birth, treatment options, etc. You could also make an appointment to talk to the cardiologists who would be treating him even before he is born. (We had a whole plan set up for treatment ahead of time.) I'm not sure what else to tell you. I'm sorry you've had to have this news. If you have any other questions you can post and I'll check back to this thread. Good Luck!
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  #3  
April 12th, 2005, 02:21 PM
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Bea Bea is offline
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Location: New Jersey, USA
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i just wanted to say.. that I am really sorry about all that was found. I am hoping that it is nothing serious. I agree the last post to contact a cardiologist and discuss all before baby is born.

I will keep you in my thoughts and prayers
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  #4  
April 13th, 2005, 08:08 PM
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Join Date: Apr 2005
Posts: 10
Quote:
Originally posted by Bea@Apr 12 2005, 05:21 PM
i just wanted to say.. that I am really sorry about all that was found.* I am hoping that it is nothing serious.* I agree the last post to contact a cardiologist and discuss all before baby is born.

I will keep you in my thoughts and prayers
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[/quote]

I too will be praying for your baby. I can't add anything more helpful except that I hope your baby turns out to be ok and that your mind is eased....and if its more serious I hope you have a strong network of loving people around you to help and support you and your family...dont be afraid to lean on those close to you.
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  #5  
April 18th, 2005, 07:22 PM
Mega Super Mommy
Join Date: Apr 2005
Location: Southeastern South Dakota
Posts: 4,389
I am very happy to say that we met with the Maternal Fetal Medicine doctor last Wednesday and had an ultrasound. The baby had moved position since the previous week's u/s so it was much easier for them to look at what they needed to. She saw the Aortic Arch right away! She said it looks beautiful and our daughter has a very strong heart beat. She also did some measurements and put the baby at a higher percentile than the last u/s technician did.

We were called earlier that day and were told that the doctor would not be able to meet with us. She wanted us to visit with the fetal heart doctor (perinatologist???). When we arrived, the doctor had come back from performing surgery in time to see us. Thank goodness we didn't have to go to the other doc.
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  #6  
April 18th, 2005, 08:14 PM
Mega Super Mommy
Join Date: Apr 2005
Location: Southeastern South Dakota
Posts: 4,389
I just wanted to say also...Momto3... thank you for your insight. I am very happy that your little one is doing well.

thanks to all for your prayers.
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  #7  
April 19th, 2005, 10:49 AM
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Join Date: Mar 2005
Posts: 40
There are a few different aortic defects...im not sure which one you are taking about. BUT...most of them are have good surgical outcomes once the baby is born!
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  #8  
April 20th, 2005, 02:32 PM
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Join Date: Mar 2005
Posts: 69
YEAH! Glad to hear it turned out so well!
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