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Anyone using Lovenox? Quick question - would really appreciate advice


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  #1  
February 13th, 2012, 11:33 AM
L-SBB's Avatar Bébé Cowgirl
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Sorry to just drop in...I was hoping there might be some ladies in here who are on Lovenox for a blood clotting gene mutation issue and could give me some quick advice:

After multiple m/c, RPL panels were run and identified that I have factor II mutation as well as an elevated anticardiolipin result, and I'm not working with an RE...but his protocol is to take baby asprin only until multiple betas confirm pregnancy is progessing, and then switch to Lovenox.

My question is, for those with similar blood clotting gene mutation, when did your doctor start you on Lovenox? Did anyone take it either prior to pregnancy (DPO3 or later) or immediately upon a + hpt?

Thanks in advance...trying to gather some thoughts before I meet again with RE and maybe push to take Lovenox earlier.
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  #2  
February 13th, 2012, 02:33 PM
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Hi! I used Lovenox during both of my pregnancies. I have a different clotting issue and a history of clots so I am on anticoagulants whether I am pregnant or not. A friend of mine has factor II and she saw an RE and had to do IUI to get pregnant. They did not start her on Lovenox until she had a confirmed postitive. She even had to wait a couple more days since she was getting her Lovenox via mail order. She was on a low dose asprin until she started to Lovenox.

Talk to your doc about it and see what they say. If it will put your mind more at ease to be on the Lovenox while TTC then maybe they will put you on it. It is insanely expensive though and it could be an insurance issue if you are not pregnant.

Best of luck!
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  #3  
February 13th, 2012, 04:45 PM
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My test results for gene mutations is pending (had it done last week), but I just started Lovenox today. I was on Coumadin because I had multiple blood clots in my lungs back in August. I'm just about 4 weeks pregnant.

Good luck, I hope you get it figured out!
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  #4  
February 14th, 2012, 09:18 AM
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I have one gene for Factor V Leiden and my doctor started me on lovenox at the begining of my second trimester. I don't have a history of blood clots, but my sister just passed away from them, so we are being extra cautious.

One thing, ask your doctor and pharmasist for the pre-loaded generic version of lovenox. It is a syringe that comes pre-loaded with your correct dose and it is super easy to use. Otherwise you get a vile of the medicine and a box of syringes......not fun.

It took me a few times to get good at the injections, but now they are no big deal.

Also, my doctor said that after the baby is born I will switch over to Cumadin for 6 weeks. I am under the impression that you aren't supposed to take Cumadin while pregnant.

Good Luck
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  #5  
February 14th, 2012, 11:11 AM
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thanks everyone for your responses...i'm hoping with next pregnancy to convince the RE to allow me to start the Lovenox sooner (at least when I get + hpt) but there's definitely a difference of opinion in the medical community on need to start earlier, so not sure how successful i'll be. I have run across a couple of ladies whose doctors had them start around 3-5DPO, but that seems to be the exception.
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  #6  
February 14th, 2012, 11:44 AM
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Just for your knowledge, I was treated by an RE for the same blood clotting factors you have popped and he started me on blood thinners as soon as I got the first positive beta. And that beta was only 10. I think he was pretty proactive and realized that with four losses in a row, that might be the only thing that saved the pregnancy. I was also taking low dose aspirin at the time and continued on through the pregnancy.

I used generic lovenox, which is still insanely expensive if insurance does not cover it (about $800 a month). They were prefilled, which was awesome. And more pharmacies carried it.

Good luck either way. Lovenox is not too bad and is well worth the end result
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  #7  
February 14th, 2012, 07:07 PM
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Yeah, BTW, I picked up my generic Lovenox last night and was SHOCKED to find out that the total cost for one month was $4,770 bucks. My co-pay was $10. I think it's because I'm on a pretty high dose/twice a day, but still. Yikes.
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  #8  
February 15th, 2012, 07:12 AM
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thanks Ashlee...i'm trying to get my RE to be as proactive as yours is, but it's a bit of an uphill battle since he's firmly in the camp that doesn't think these mutations cause 1st tri loss. I'm hoping now that this last loss happened on his watch, with his ideal protocol followed, that he'll at least consider starting me on the Lovenox sooner.

Thanks everyone for the warning on the cost...it's crazy how expensive these meds are. I am lucky that I do have good prescription coverage, but I'm sure it'll still be costly based on what you're already paying for the generic...
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  #9  
February 16th, 2012, 03:26 PM
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You can bring him some more research....I have heard that if there are multiple losses you should be on something right away.

I have spoken to a specialist and he assures me that there is no risk to the baby from this medicine, however the risk of loss is high if we don't take it.

And my co-pay is also $10 for a week supply. My sister had a co-pay of $100 for a months supply.....but it's well worth the cost.
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  #10  
February 17th, 2012, 11:24 AM
AliciaF's Avatar Mega Super Mommy
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I have lupus anticoagulants and I am hetero C677T MTHFR. After 3 losses my OB recommended Lovenox from 3dpo and the cycle that I started that I had a successful pregnancy. Good luck and I think early Lovenox was the major factor in my successful pregnancy.
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