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Has anyone else out there got a repaired Coarctation of Aorta or know someone who has one?
Hubby & I are ready to start TTC but I would like to know what anyone else's experience is with pregnancy & repaired CoA - any complications, things to watch for etc. I have an appointment with my cardiologist next month - checkup + discussion - but I want to be prepared with questions to ask.
Half of me says everything will be fine, the other half keeps throwing the what-if's at me.
Any advice or help greatly appreciated! I am finding it very difficult to find anyone else who has had this experience.
I'm sorry I don't have any inside info for you. I just wanted to send you some HUGS because it sounds like you're in a difficult and scary position. I was born with congenital heart defects, which were repaired through open heart surgery when I was 13. Fortunately, once mine were repaired, I didn't really have to worry about it again; pregnancy wasn't an issue. I can sympathize with your position, though. I remember hearing that if I didn't have the surgery, I might not be able to make it through pregnancy/childbirth, and I was terrified and distraught, even at such a young age. My heart goes out to you for having to deal with these fears during what should be such an exciting and happy journey. I hope the meeting with your cardiologist gives you some answers and helps calm your fears. I wish you the best of luck.
Anne, thanks for the positive thoughts - it's amazing how difficult it is to find someone else out there who has had this experience. I'm positive I'm not the only woman with a repaired CoA who has had kids - though I confess I'm beginning to wonder!
It is a bit scary, but I know that I will get the best care - and my cardiologist certainly won't let me do something that is going to put my health at risk.
95% of the time, I could honestly forget that I'd ever had surgery, and I am probalby lucky in that it was repaired late in life (when I was 23), I'm 29 now.
I will try to remember to post here again after next month's visit....