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  #1  
July 16th, 2007, 01:02 PM
SandyJ's Avatar Platinum Supermommy
Join Date: May 2007
Location: Knoxville, TN
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Hi all!

I've really not explored far from my DDC but decided to see what else was out here today! I'm glad I found this board!

I knew before I became pregnant that I would be immediately labeled a high risk pregnancy. My first pregnancy last year ended in m/c at 20 weeks because of early oligohydramnios and Potter's Syndrome. So far this pregnancy has gone very well. But the low amniotic fluid was not discovered until I was 18 weeks last time, and Potter's was diagnosed at 20 weeks, so I am on pins and needles till my 20 week u/s in late August. If all goes well and Potter's does not show up again, I will remain high risk for the rest of my pregnancy to make sure low amniotic fluid doesn't become a problem again as well.

I don't particularly like my perinatologist but I only have to see him for the ultrasounds. At least he's gentle with the amniocentesis needle cuz I am a HUGE needlephobe!! My OB is fortunately fabulous!
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  #2  
July 16th, 2007, 01:40 PM
Cindermella's Avatar Freakin Know it all
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oligohydramnios is caused by the Potter's Syndrome so if you don't have one ( and lets hope and pray you don't) Chances are small you will have the other.

Welcome to the group.

I am Mel.
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  #3  
July 17th, 2007, 08:15 AM
SandyJ's Avatar Platinum Supermommy
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Thanks Mel! I realize Potter's causes low amniotic fluid, but for some reason my OB is convinced that even without a Potter's diagnosis I will still be at risk for oligohydramnios. I feel its a pretty low risk too, as I was tested for an ability to retain fluid last time and it was determined that the oligo. was entirely caused by the Potter's and not by a simultaneous leak or tear in my womb. If the docs want to be cautious I am not going to discourage them though! I think the main concern is that there is some underlying issue they couldn't diagnose, because my womb was completely dry which is rare even for Potter's, and my baby's autopsy also revealed an anatomically whole baby with no missing kidney's or apparent blockage (also rare in Potter's, but not unheard of). We're still all a bit puzzled as to where/how the Potter's developed but there's no mistaking that it did. We're crossing our fingers that our baby has no defects and that oligo. doesn't become a separate problem either!
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  #4  
July 17th, 2007, 08:56 AM
Cindermella's Avatar Freakin Know it all
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Good thinking not discouraging the extra doctor attention.I wouldn't either.Well you need to always hope for the best.Is Potters syndrome genetic I am wondering? I will have to look that up.this is comforting. The risk of reoccurance is only 3%.

Did you get genetic counciling.
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  #5  
July 24th, 2007, 07:55 AM
SandyJ's Avatar Platinum Supermommy
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Quote:
Good thinking not discouraging the extra doctor attention.I wouldn't either.Well you need to always hope for the best.Is Potters syndrome genetic I am wondering? I will have to look that up.this is comforting. The risk of reoccurance is only 3%.

Did you get genetic counciling.[/b]

Hi Cindermella! Potter's is generally nothing more than a chromosome abnormality- a freak mutation that is not genetic. Despite that we did have a genetic screening and a full autopsy. The baby's autopsy turned out to be even more confusing, as I mentioned before, but the genetic screening revealed that neither my DH nor I are carriers for any major/common genetic diseases. That was comforting. I do try to tell myself that there is every reason in the world to think I will continue to have a normal pregnancy, but you never know. I am the first person in my family, out of all my aunts, cousins, and grandmas, to have pregnancy complications so we were all a bit stunned by it. The only exception would be one grandmother who did have 3 early miscarriages in the 1940's, but also 3 healthy children.
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  #6  
July 24th, 2007, 11:24 AM
Cindermella's Avatar Freakin Know it all
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Hey Sandy
was wondering how you where doing.

Well glad to hear its not genetic.
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