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Amniotic Fluid Leak (after CVS)


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  #1  
July 5th, 2011, 03:31 PM
Newbie
Join Date: Jul 2011
Posts: 2
Hello friends - I need some help. I am 40 and finally pregnant with my first child - a little girl due this Christmas. A few weeks ago I did the CVS test to be sure that there were no chromosonal issues. Thankfully, all the results came back great, and we learned that our little baby girl was healthy. However, the act of doing the test itself tore my amniotic sac and I have been leaking amniotic fluid on an off for the last 4 weeks. During our last doctor's visit (last week), the doctor was optimistic and thought the levels were rising and the Amniosure test came back negative for traces of amniotic fluid. However, today I am 15w4d, and this week the leaking started again, and today's ultrasound showed significantly lower fluid levels. I am so worried about my little girl. She looks so squished in there and I am concerned that her lungs won't be able to develop. She's still fighting - her heartbeat was 138 and she was moving a lot... but the doctor said that if the levels don't significantly increase in the next 3 weeks, we'll have to terminate the pregnancy.... I am hysterical and beside myself. I blame myself for doing this stupid test that has harmed my otherwise healthy baby. PLEASE let me know if you have any suggestions how to stop the leaking and increase the fluids. Has anyone heard of the amnioinfusion - and do you know if that is something we can do? I am desparate. I want nothing more than to bring my little girl home this Christmas strong and healthy. Please share your suggestions and keep us in your prayers. Thanks and much love.
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  #2  
July 21st, 2011, 08:19 AM
Platinum Supermommy
Join Date: Dec 2006
Location: Pacific NW
Posts: 13,880
Welcome to the forum! I'm so sorry you're going through this. My son ended up being born early because of a premature rupture of membranes--it was a big gush, rather than a slow leak. I ruptured at just shy of 27 weeks. At that point, they told us that assuming I didn't go into labor, I could stay on bed rest until 34 weeks, even with such a major loss of amniotic fluid. I'm not sure if things are different earlier in pregnancy, but I did have a friend we met in the NICU who had a slow leak that started much earlier than mine. She delivered at I think 29 weeks? after quite a long time on bed rest. Her son is now 4 and although he had some hip issues when he was an infant, he is now by FAR the most athletic kid I have ever met. Seriously, last summer he was at our house shooting hoops like an NBA star, it's crazy!

Have they put you on bed rest yet? Laying down helps gravity keep everything in there, so hopefully you'll be able to build up more fluid. The other thing that can help is drinking just RIDICULUOS amounts of fluids, I mean, drink so much your eyeballs feel like they're floating.

You might want to check into some of the premature rupture of membranes groups out there--here's a link to a Facebook group:

https://www.facebook.com/permalink.p...ups/pprom?ap=1
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~Beth in Seattle



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  #3  
September 15th, 2012, 12:15 PM
Newbie
Join Date: Sep 2012
Posts: 1
Please let us know what happened. Did you give birth to a healthy baby? My wife has some minor leakage after a CVS and I'm becoming increasingly worried. I don't know how I'll be able to live w/ myself if doing the TEST is what caused this.
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  #4  
September 16th, 2012, 08:39 AM
Newbie
Join Date: Jul 2011
Posts: 2
Tekka_Maki - First, let me say that I am so sorry to hear that you all are going through this. I haven't been on this board for over a year, but when I saw your post, I had to respond.... supposedly only 2% of people have any complications from a CVS, and when I was dealing with this last year, I didn't find any others... After my CVS, I was on bed rest for a week to try and let the puncture heal...The perinatologist who did the procedure had no other options for us besides that and wait and see.... They started measuring our fluid weekly, but there weren't really any significant gains and the hole never healed because it was at the bottom of the sac.... I think the doctors were just waiting for me to miscarry, but I didn't - each week my daughter kept growing despite her low fluid levels. At 16 weeks I had another big gush of fluid (we think that the small hole had torn based on baby's weight or
movement). From there we found a specialist in Miami (Dr. Quintero) who tried an amniopatch to seal the hole... But it had been too late...If we had gotten there before the tear, it may have worked, but the tear was too great for the patch... They then tried another experimental procedure, but that too didn't work. Had I stayed pregnant till 28 weeks, they had one more procedure to try to help her lungs expand (one of the biggest concerns with low fluid being the inability of the lungs to develop).... Unfortunately, however, I went into preterm labor at 24 weeks.... My beautiful little girl weighted a little over 2 pounds and fought bravely (as she did my whole pregnancy), but she only stayed with us for 3 hours.... From what I understand now, as a result of low fluid for 12 weeks, air pockets developed behind the placenta and the placenta prematurely torn away from the uterine wall, sending me into preterm labor. I wished I had a happier ending to report... The last year was the hardest of my life and I wouldn't wish what my husband and I have gone through on anyone... The only advice I can give you is to find a good doctor that you trust... Maybe someone who has some options for you other than wait and see... And please don't blame yourselves.... We do these tests based on the recommendations of our doctors and the information we have available - the bad things that sometimes happen are not anything that anyone wants, and they are not common.... BEST OF LUCK TO YOU... I sincerely hope that everything works out for you and you have a happier ending...
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amniotic; leak; cvs; prom

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