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Forum: Trying to Conceive with Endometriosis

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  #1  
April 12th, 2010, 01:34 PM
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I really think I am going to push my doctor to do one within the next few months. I don't see any point in waiting when I am having these symptoms and not getting pregnant.
So I have a few questions:

How did you convince your doctor to do a laproscopy? Did you have to demand one, beg for one, or did you just find a doctor who believed that your symptoms were caused by endo and decided it was the best thing to do?

How did it go? Anything I should know about having a lap.....

How was the recovery? Basically, am I going to need someone around to help with my one-year-old son for awhile? Are there any restrictions?

How long until you could start TTC again?
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  #2  
April 12th, 2010, 02:29 PM
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After trying to TTC for a year or so, I was referred to a fertility specialist. She tested everything else.. and we came out clean. So I went back to my OB/GYN. Based on my symptoms he recommended I do the laproscopy to see if I had it.. and I did. The reason I left the fertility doctor is because she said yes, she thought I had it, but wanted me to try IUI a few times first.

This was done on Friday at 11am. By 3 pm, I was fixing myself a sandwich and by 6pm I was playing gently with my 2 year old. Im back at work today.. and wishing for a few stronger tylenols.. but doing just fine.

In hindsight, I would probably clean out my bowels beforehand (probably TMI).. but otherwise, it went well. Digestion has been a bit difficult the last few days.. i think my insides are a bit rearranged compared to before.
We have to take 1 week off from any BD activity.. and we can begin TTC again in a few weeks once O shows up! (i scheduled my laproscopy a few days before AF.. it worked out best for good visuals while they worked inside, and for good timing so I didn't have to skip any TTC cycles).
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  #3  
April 12th, 2010, 03:25 PM
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Thanks! I would like to schedule my lap for a few days before AF as well, especially since that's when my symptoms are flaring up.

How could you be "sure" that you weren't pregnant though? Did you just take a test to be sure?
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  #4  
April 12th, 2010, 04:36 PM
angel3y35's Avatar Mega Super Mommy
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My doc brought up the lap all three times. The surgery in itself isn't bad. You'll just be sore for a few days. I had to have help getting up the first 48 hours or so. You aren't supposed to lift anything over 5 pounds for at least a month. ( I could hold my friends 12 month old but couldn't actually pick up up because the lifting hurt). I agree with the bowel prep. For a lot of people anesthesia slows things down and they end up getting stopped up. As far as trying again. Some docs recommend you wait a few months because things inside are still healing and it could be pretty painful, some don't care. I went for my 4 week check up and my doc said "are you pregnant yet? why not, i didn't tell you you couldn't have sex
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Our adoption miracle born 12/31/13


06/2004 - Lap for endo and cysts
08/2006 - Lap for endo and cysts
02/2010 - Lap for endo, cysts, and hydrosalpinx repair
02/2011 - Lap for endo, cysts, and RSO
12/2011 - TAH and LSO
5/2012 - Lap for adhesions
4/2013 - Lap for adhesions
Stage IV endometriosis, sever adenomyosis, PCOS, IC
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  #5  
April 13th, 2010, 09:40 AM
IneedCoffee's Avatar Platinum Supermommy
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They did a blood test as well as a pp test before the procedure. To be sure I wasn't pregnant. I would recommend requesting one a few days ahead.
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  #6  
April 14th, 2010, 11:05 AM
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How did you convince your doctor to do a laproscopy? I don't have endo pain, so the only symptom of endo I have is infertility. After doing 3 failed IUIs and having a diagnoses of "unexplained infertility", I asked my RE about a lap and she said she was going to suggest doing that next. So, that's what we did and I ended up having stage 3 endo.

How did it go? The surgery itself was fine. It was the recovery that was miserable for me.

How was the recovery? They put some sort of gas in you during the surgery to make moving around in there easier. Afterwards, there's always leftover gas which your body will absorb. It was that gas that was so painful to me. Because of it, I had so much pain in my back, neck and shoulders. I couldn't get comfortable. Make sure you have heating pad next to you....the heating pad will become your bestfriend for a couple days. It took me a good couple days to start feeling better and probably a total of a week before I was back to 100%.

How long until you could start TTC again? I think we were told to wait one cycle before ttc.

Last edited by AllisonC; April 14th, 2010 at 11:07 AM.
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  #7  
April 14th, 2010, 01:45 PM
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I had waited years to find a dr who would do the surgery on me. I met my ob in July of 07 and by end of Nov we had me in there did the lap and he removed all of the endo he could find and told me my tubes didn't look good so he wanted me to heal from this and then go back in to check my tubes.

After I healed I didnt bother with the lupron shot I was too upset by the fact my tubes didn't work and there wasnt any reason in my head at the time to even bother trying.

Feb 22, 2008 af was to arrive...and she didnt. for the next 24 hours I lived in denial that I could possibly be pg.

Feb 23rd I was convinced to take the first of many many pg test..

I got my bfp with my son 3 months after my surgery.
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  #8  
April 14th, 2010, 02:10 PM
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Why are doctors so hesitant to do the surgery? This is my big fear, especially since my symptoms are so weird--that I will have to go from doctor to doctor to doctor looking for someone who will believe me and investigate further.
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  #9  
April 14th, 2010, 08:57 PM
angel3y35's Avatar Mega Super Mommy
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Even though it's not a major surgery, it's still surgery and there are always risks. A lot of doctors want to go through everything they can before they do the surgery.
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Our adoption miracle born 12/31/13


06/2004 - Lap for endo and cysts
08/2006 - Lap for endo and cysts
02/2010 - Lap for endo, cysts, and hydrosalpinx repair
02/2011 - Lap for endo, cysts, and RSO
12/2011 - TAH and LSO
5/2012 - Lap for adhesions
4/2013 - Lap for adhesions
Stage IV endometriosis, sever adenomyosis, PCOS, IC
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  #10  
April 14th, 2010, 10:43 PM
akicequeen02's Avatar Super Mommy
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How did you convince your doctor to do a laproscopy? I went to a Dr first in March and he thought I probably had endo but told me that my husbands low morph was a bigger issue for us. He did a lot of testing but never offered lap (I did research myself to find treatment) or anything for my pain. I went to a second person (ANP who specializes in fertility) and she immediately said I needed a lap and scheduled me a consult with my surgeon. I had my lap a couple weeks later and she found endo all over. Told my family "worst case I have seen in a long time."

How did it go? It went fine. Only an hour in surgery. I did/do have some she was unable to get because it was on my tubes. I still had a lot of pain after surgery with my cycles. Thats why she wanted me to do the lupron injections for 6 months.

How was the recovery? I had surgery on Thursday and went back to work the next Tuesday. I have to walk a lot with my job. Probably could have used another day... couldn't have done Monday. We did go on a little bit of a road trip that weekend because it was scheduled months in advance. I slept in the car on the trip and took naps all weekend.

How long until you could start TTC again? We did an IUI the next month. It was neg, did another the month after that... another neg. Then started the lupron.
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Last edited by akicequeen02; April 14th, 2010 at 10:50 PM.
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  #11  
April 15th, 2010, 08:44 AM
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How did you convince your doctor to do a laproscopy? My Dr actually begged ME to go with it. He was certain he was going to find endo, and there was some, just not as much as he was expecting.


How did it go? http://www.justmommies.com/forums/f1...lap-story.html (big long lap story)

How was the recovery? Meh, I managed wit my b 3 year old. It's real sore, and my belly button still feels weird

How long until you could start TTC again? asap
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After years of trying, 2 years of fertility meds, multiple surgeries, blood draws and needle sticks, some awful pre-IVF complications, and endometriosis and PCOS,
We are done TTC. Praying for peace as we accept this...
Hoping for some comfort after our most recent (and 3rd) surgery and starting Lupron!






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  #12  
April 15th, 2010, 09:33 AM
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Quote:
Originally Posted by angel3y35 View Post
Even though it's not a major surgery, it's still surgery and there are always risks. A lot of doctors want to go through everything they can before they do the surgery.
I understand that, but with endo, what else really can they do to diagnose/treat it? I'm having an MRI in a few weeks (got the order changed, it's now of my pelvis), but I don't *really* expect anything to show, although I have researched and there a quite a few cases where endo of the sciatic nerve (what I think I have) did show on MRI. I mean, there's really not much else they can do besides surgery, is there?

I guess I just don't to wait until we've been trying a year or more, THEN get the surgery done, and find out that are chances were zilch anyway.
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  #13  
April 15th, 2010, 11:34 AM
~*Jackie*~'s Avatar Platinum Supermommy
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How did you convince your doctor to do a laproscopy? My OB/GYN mentioned it a few months after we started TTC- only because the pain was horrendous and I ended up in the hospital, getting a CT scan because my regular doctor was thinking my appendix was bursting... But after talking it over with my OB/GYN, he was pushing to "get me pregnant" first before dealing with surgery. If I had only known then what I do now. Anyway, after my first visit with my RE, and he reviewed my tubal swelling from my HSG I had a few months earlier, he said he wouldn't proceed with any fertility treatments until I had a lap and we took care of the endo.

How did it go? It was fine. I have a lot of endo on my bowels/intestines, so I had to do a clear liquids diet for the entire day before it, followed by an enema that night. Fun stuff. The surgery itself wasn't too bad- mine was pretty long, but my endo is very extensive. The worst part for me was in the recovery room because that anesthetic and I don't get along too well. I took a full 2 weeks off of work, as instructed by my surgeon, but truth be told, I'm sure I could have been back to work a little sooner- just off my feet as much as possible. I didn't have any little ones to chase after, so you may want someone to help you out for the first couple of days. I was home alone every day except the day after the surgery.

How was the recovery? I guess I answered that already.

How long until you could start TTC again? We were allowed to DTD when we "felt" like it, but that wasn't for about 2 weeks after my surgery. We were allowed to TTC right away.
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Our TTC journey: 6 cycles Clomid, lap surgery/ D&C, IUI, 2 x IVF; 33 cycles- BFN.
IVF#1 (March 2010) Transferred two 8-cell grade A (perfect) embies- BFN and heartbroken.

IVF#2/FET#1 (Jan/Feb 2011):Transferred two (7&8 cell) grade A (PERFECT) embies- BFN again.
March 2011- February 2012: On BCP due to endometriosis.

March 2012- taking a few months off of BCP and we are TTC naturally.
We will re-evaluate another IVF w/FET try in 2013.



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  #14  
April 15th, 2010, 08:03 PM
angel3y35's Avatar Mega Super Mommy
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Quote:
Originally Posted by wishfulgal View Post
I understand that, but with endo, what else really can they do to diagnose/treat it? I'm having an MRI in a few weeks (got the order changed, it's now of my pelvis), but I don't *really* expect anything to show, although I have researched and there a quite a few cases where endo of the sciatic nerve (what I think I have) did show on MRI. I mean, there's really not much else they can do besides surgery, is there?

I guess I just don't to wait until we've been trying a year or more, THEN get the surgery done, and find out that are chances were zilch anyway.

There isn't really anything else they can can do. It seems like even though there are tons of women with it, it's the number one cause of fertility problems, doctors still seem to think that it's rare. After the MRI if your doctor still won't do a lap, find another one. I know it's a horrible, frustrating process, knowing your body and knowing that there is something wrong with you and having doctors blow you off. You WILL find a doctor who will listen to you and trust that you know your own body better than they do.
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Thanks to :shortcake: for my siggy

Our adoption miracle born 12/31/13


06/2004 - Lap for endo and cysts
08/2006 - Lap for endo and cysts
02/2010 - Lap for endo, cysts, and hydrosalpinx repair
02/2011 - Lap for endo, cysts, and RSO
12/2011 - TAH and LSO
5/2012 - Lap for adhesions
4/2013 - Lap for adhesions
Stage IV endometriosis, sever adenomyosis, PCOS, IC
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  #15  
April 15th, 2010, 08:42 PM
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How did you convince your doctor to do a laproscopy? I have had painful periods since I can remember. At least since I was 12 so about 11 years before I decided something needed to be done. I literally would vomit almost every time I got AF. Ugh. My mom had Endo, my mom's mom and my moms sister. So I pretty much figured I had it. I went and saw the doctor who my mom used. He is one of the best on the East Coast and answers all your questions. Love him. So we discussed my symptoms, he asked about family history and he did an exam. He said he was 99% sure I had it. obviously the only way to be sure is a Lap. He wanted me to get the lap and although I was super scared (never had surgery before) I knew it was for the best. So a few months later I had it and found out it was Stage IV and all over

How did it go? It went well as it could. They found a lot of Endo on my bowels, bladder, uterus, fallopian tubes, ovaries etc. I had the surgery Friday and was back to work the following Wednesday. Although I really should of taken the whole week off. Having to worry about work while I am still recovering wasn't the best idea. I was under for about 2 hours so this is considered long, normal is about an hour or so. I felt extremely sick after the surgery but this was because of the anesthesia. Also for about 3-4 days I had horrible back pain near my shoulder blades. This is actually quite common and is a result of the gas they use, to expand your belly when they are in there to see all the organs better, which ends up dissipating into your body. Because you are laying down it tends to gravitate towards your shoulder blades so that was not fun! Scaring was to be expected and it was very minimal. 6 months of Lupron and 8 months of Femera as well. I have been TTC for 3 months so we shall see how it works out!

How was the recovery? See above

How long until you could start TTC again? Well since I was on Lupron and Femara I couldn't get pregnant since I was put in a menopausal state. I mean the possibility was still there to get pg but we played it extremely safe. I didn't want to have these horrible drugs in my system and all of sudden find out I am pg. I didn't want that to happen to a baby. So after I got AF in January we started trying asap

I think that about covers it PM me if you have any other questions I feel like i am the endo queen now.
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