[JennaBee]

I'm not sure what is going on but the more research I do the more worried I am. Any help or ideas or advice (besides see my OB which I plan to call on Monday) would be greatly appreciated..

I'll start at the beginning. I got my first AF at age 14. It was horrific. I spent 2 years in complete hell. The pain was so unbearable I would miss days of school every month curled up in bed with my mom and just scream and cry. In those 2 years my doctors tried me on a host of pain killers. Ultracet, Darvocet, vicodin, percoset etc. none of them helped. Some helped take the edge off the pain but made me violently sick. I had a GI scan done, colonoscopy and other tests and all were thought to be related but tests were clear. At age 16 I was put on birth control pills. Which did help take the edge off. My periods even on BCPs were super heavy soaking super pads in an hour , lasting 5-10 days and super painful. but life went on and I learned to deal.


In 2008 I found out I was pregnant with my first daughter (I was still on birth control, religious about taking it and had no medicine etc to interfere) she was delivered 4 weeks early due to growth restriction and pre term labor. In the time they were monitoring me they noticed I had 3 cysts, 2small one large that they monitored as well. I was told they would resolve on their own and never asked about it more.

Between January of 09 and December of 09 I lost 2 pregnancies. In early 2010 I found out I was pregnant with my DD2. I had a horribly difficult pregnancy and preterm labor was kept at bay from 28 weeks on and she was delivered at 35weeks 3days. Upon monitoring during her pregnancy they also noted a few cysts but never said anything more on it and being so concerned about my DD I never mentioned more of it.

Sex has always been uncomfortable for me. I am only 5' tall so I always contributed it to just being small- never knew there was any difference. However, after having children it has become even more uncomfortable. I can barely tolerate it let alone enjoy it. DH does all he can to be gentle and work with me but it's very difficult.

Since DD2's birth in September 2010 I have lost a second trimester angel in January 2011 and twins in May. We decided to ttc again and induced a post pardom period last month with progesterone. It was horrific but I figured it was the progesterone. We tried this month and although everything looked perfect we did not conceive.

I started my period again today and it is the most pain I've felt in a long time. In all honestly labor felt less. Since starting a bleed at 8am I have already soaked through 15 super tampons and overnight pads simultaneously. It's now 1pm. The pain is incredible. I had some left over tylenol with codeine from a shoulder injury and took the max and it hasn't even touched the pain. It's in my back as well as abdomen. If I didn't know any better I would think I were in labor with back pain and everything... I can't walk I can't talk it's just awful. I called my SIL complaining of it all and she mentioned she thought it may be endo. she just did a paper on it for a college course last term and said it matched up a lot with what I have been/am going through. I figured what better place to ask then with women who have it.

Does any of this sound similar to any of your experiences? Is there any validity in my concern?? Anything in particular I should ask my OB on Monday or request? I am so out of me element here but I am reaching out trying to find anything to help this pain... Thank you so much for reading through all of this and for all your help!

[Mod-kerian]

hi and welcome to the endo board.
i am so sorry to hear you goiung through all this pain and i am really sorry for your losses (((hugs))).

i would def chat to your ob about the possibility of endo. alot of the symptons do add up to endo. but unfortunately majority of the time you need a laparoscopy to confirm endo. although some specialists do have superior ultrasounds and if nodules are there they can see them on the scan.

in the meantime for the pain, the only thing i have found helps is taking an anti inflammatory with codeine and paracetamol. alot i know but it is the only way i can function. and try a warm bath till the pain killers kick in.

i also found the pain is much more severe since having my daughter.

please let us know what your doc says when you chat to him!

[Cait&AngelAbove]

Hi and welcome to the board! I am so sorry that you are in so much pain and I am so sorry for you losses! It definately sounds like it could be endo so I think it is a good thing you are going to see your doctor on Monday. Nothing I took really even helped with my pain. I had a laparoscopy done this past February then I was diagnosed with stage four endo. I then went on the Lupron Depot shot for six months. Please let us know what your ob says.

[rlh27]

I don't have anything to add other than what has already been said. Just wanted to let you know that I hope the doctor can get to the bottom of what is causing your issues. I understand how difficult life can be with pelvic pain.

[JennaBee]

Thank you all!! I really appreciate your support and responses. I see my OB/GYN this afternoon so I will update when I have more information. THank you so much!!

[Mod-kerian]

waiting for your update!!!