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I'd like your opinions/G tube decision


Forum: FTT and Weight Gain Issues

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  #1  
May 14th, 2008, 09:03 PM
Regular
Join Date: May 2008
Posts: 7
Hello. I am new here and haven't had time to read much yet, but would be interested in any opinions regarding Gtube placement. I am currently doing NG tube at night only. I think my pediatrician has been leaning toward the Gtube for some time. I guess I was hoping to avoid it, but it's time to admit to myself that my son wouldn't even weigh what he does if not for the NG tube. In many ways, the Gtube would make things easier and I think it would be easier for him to work on eating without that tube in his face.

Without going into the whole story, we came home from hospital with NG at 6 months old. I knew it was supposed to be a short term solution. When we saw peds GI, she had us reduce amount of food & feed only at night, to give him chance to eat during the day. But we leave the tube in all the time. Should I take it out & re-place at night? Seems I read about someone doing it that way.

At this point, we have no diagnosis. The GI & the developmental specialist we saw both said they think it is something he will outgrow. I think my ped. agrees, but his concern is, when will that be. When he is 2? Or when he is 8? The hospital team said...... at this point, he is sort of a mystery to us. It seems that there are people here who have had NG for some time, so I'm just wondering if any of you with experience have an opinion. Should I just go ahead & do Gtube? Or is it workable to continue with the NG for a little longer to see if things turn around? Thank you so much for any advice or opinions.
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  #2  
December 22nd, 2008, 12:12 PM
Newbies
Join Date: Dec 2008
Posts: 2
Hi, I am new as well.

My son was just put on a G-tube 6 weeks ago. He is 2 1/2 years old. We have been fighting the feeding tube idea for 10 months and due to other medical issues, my husband and I finally agreed to do it.

He was never put an NG tube because my son is extremely active and he gastrenologist said that he would pull it out constantly, causing an unnecesary battle.

It was the scariest thing we ever did, but 6 weeks later I can honestly say it was the best thing we ever did. He has gained 2 pounds and grew 3/4" in 6 weeks. That is more than he has done in a year.

He is night feeds only because he does eat on his own, but not enough (maybe 300 calories a day). I am now able to push his meds through the tube and his medical issues seem to have stabalized for the time being.

Some things to consider is that there will be a whole in your child's stomach that when taken out for good, will leave a scar. Granulation tissue might grow around the site that may require a steroid cream, but it is not painful. You will have to check the fluid in the baloon (the part that goes in his stomach) but after the first time it is a piece of cake.

I would strongly suggest a button. If your child is going to be on it for a while, the button (or Mikie) is the way to go. My son actually opens and closes his button. As your child grows you will have to change the button, but after the first time it is nothing. My son accidentily stepped on it in the first 2 weeks and pulled the tube out of his stomach. We went to the ER and it took 30 seconds for them to put it back in and then I knew what to do. They had to take x-rays to make sure the tube was in his stomach because it was so new, but everything was fine.

I give you credit, my husband and I didn't think we would be able to put the tube down his throat for a NG tube and we were lucky that we had many doctors agreeing that the G-tube was the way to go.

Hi, I am new as well.

My son was just put on a G-tube 6 weeks ago. He is 2 1/2 years old. We have been fighting the feeding tube idea for 10 months and due to other medical issues, my husband and I finally agreed to do it.

He was never put an NG tube because my son is extremely active and he gastrenologist said that he would pull it out constantly, causing an unnecesary battle.

It was the scariest thing we ever did, but 6 weeks later I can honestly say it was the best thing we ever did. He has gained 2 pounds and grew 3/4" in 6 weeks. That is more than he has done in a year.

He is night feeds only because he does eat on his own, but not enough (maybe 300 calories a day). I am now able to push his meds through the tube and his medical issues seem to have stabalized for the time being.

Some things to consider is that there will be a whole in your child's stomach that when taken out for good, will leave a scar. Granulation tissue might grow around the site that may require a steroid cream, but it is not painful. You will have to check the fluid in the baloon (the part that goes in his stomach) but after the first time it is a piece of cake.

I would strongly suggest a button. If your child is going to be on it for a while, the button (or Mikie) is the way to go. My son actually opens and closes his button. As your child grows you will have to change the button, but after the first time it is nothing. My son accidentily stepped on it in the first 2 weeks and pulled the tube out of his stomach. We went to the ER and it took 30 seconds for them to put it back in and then I knew what to do. They had to take x-rays to make sure the tube was in his stomach because it was so new, but everything was fine.

I give you credit, my husband and I didn't think we would be able to put the tube down his throat for a NG tube and we were lucky that we had many doctors agreeing that the G-tube was the way to go.
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