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We had our consult with the surgeon yesterday to discuss Cade's g tube placement and besides them not having us on the schedule (lovely!) and having to wait too long to see him it went well. Once he got to us though I was very pleased with him, he didn't rush and he answered all my questions in detail. He wants Cade to have an upper GI before he does the surgery and that is scheduled for Sept 18 and his G Tube placement is scheduled for October 3rd. They will put the button in laporoscopally so he won't have a long tube at all. I'm not sure exactly what kind of feeding schedule he will be on yet, we will talk to the nutritionist about that and figure out what will work best for Cade. He does eat orally now so I do want him to continue to do that. The doc said he may take in less orally at first, but we will just have to wait and see how he handles it.
Now I just have to figure out how to really explain it to him. I have told him, but I don't really think he gets it. I'm not exactly sure how to break it down better for him. He did tell me he didn't want it - but he hates change, of any kind, so I also get that reaction for any kind of change - big or small.
I am still pretty nervous about it, especially the initial grossness right after it is put in. I want to make sure I care for it properly and keep Cade as pain free as I can.
Glad the surgeon was able to answer your questions. Good luck with the upper GI and with the tube placement. I really have no advice for explaining it to Cade but I hope that he is accepting of it and that the transition goes well for him.