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Forum: FTT and Weight Gain Issues

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  #1  
January 24th, 2005, 05:57 PM
pattyandthemoos's Avatar Administrator
Join Date: Feb 2004
Location: Michigan
Posts: 61,614
I just seen the specialist last week. She suggested adding vegetable oil to Brandon's baby food to get in some extra calories. I thought it was a good tip so I wanted to pass it along.
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  #2  
January 25th, 2005, 01:02 PM
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Join Date: Jan 2005
Posts: 5
I am a mother to 9 month old B/G twins. My little girl Sarah was born weighing in at 2lbs 15oz. Currently at 9 months old she weighs 10lbs 11oz her twin brother currently weighs in at 20lbs 4oz (quite the difference wouldn't you say). She had a two vessel umbilical cord instead of the normal 3 vessel her brother had and was classified with IUGR (inter uterine growth restriction). Her brother was born weighing 4lbs 13oz. They were born 6 weeks early. Sarah has always been small and doesn't eat much. She grows so slow. We have tried everything under the sun. We have a nutritionist that comes to our house every 2 weeks now to weigh her and give us suggestions to add calories. We too add Oil to every bottle. We also add 1 tablespoon of melted butter (which has 100 calories to ever tablespoon) into her solids. We see a GI specialist in Feb to try and determine if there is anything wrong with her stomach or absorption or if there is nothing wrong at all and she is just going to be smaller but for now we are doing this. She came home on Similac Neosure which we concentrated to make 30 calories for every ounce. She was so gassy that now she is on Lactose Free that we concentrate (we just thought we would try this) and she is so much happier.

After pushing and pushing our Pediatrician to do something (he has the wait and see approach) on Friday at their 9 month appt he prescribed Periactin. It's an antihistamine but one of the side effects is that it increases appetite. They no longer prescribe it for allergies but do prescribe to children or adults with eating disorders. So far it seems to be working in just a short period of time. Sarah is finishing all of her bottles and has even added 1-2 bottles a day. She eats a jar and 1/2 of food as well. In just the 3 days she has been on it she has gained 4 oz which is good for her. You might ask your Dr about the Periactin. I know some Moms on the Ivillage Board swear by it as it has been a miracle for their FTT children. There is a 50% chance that you child may not respond to the side effects but some moms cycle as their child gets used the side effects so they cycle one week on one week off and most report significant progress. The other side effects are very minimal and they say it's as safe as safe can be. At first they might sleep more (kind of like with Benedryl, or they may become hyperactive) but that wears off as they get used to the effects. Otherwise they just eat better.
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  #3  
January 25th, 2005, 04:20 PM
pattyandthemoos's Avatar Administrator
Join Date: Feb 2004
Location: Michigan
Posts: 61,614
Thanks so much for your advice. I hope you will stick around here as well. There are not a lot of other moms here dealing with this. Brandon's problem with FTT has been primarily from feeding issues. But also with his appetite. But I would say more so with difficulty eating. He has oral dysphagia and has a hard time eating/chewing textured foods. He is eighteen months and is not eating any table food. Well he has just started eating a couple of things but we are still struggling with this. I am thrilled that he is finally eating baby food. He was in the hospital in October and he was not eating anything but rice or oatmeal cereal and pureed fruit. So he is doing remarkably well. Right now his weight is good. He is in the tenth percentile so I am happy.

Please stick around. We could use a few other moms here that have been through this.
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  #4  
March 8th, 2005, 08:42 PM
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Join Date: Mar 2005
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My son is 15 months (nearly) and only weighs about 18 pounds. He will not finish more than 3 ounces of formula in one sitting. He has never been able to eat a whole jar of baby food (not even the smallest jars), he honestly will not eat more than one tablespoon or so of food at a time. When he was born (full term), he was a good average weight of 7 1/2 pounds. He seemed to be gaining well, but then the weight gain slowed down and this last month he actually lost nearly a pound. I am so sick of doctors. The first one who ever saw him (at a week old) failed to diagnose the very loud heart murmur that my friend (a pediatric nurse) heard just the next day. Since then, we changed to another doctor who referred him to a cardiologist and we discovered he has an atrial septal defect and pulmonary stenosis. Both issues will require surgery, but they don't want to have to do open heart and would like to go in through the groin. However, before they can do that, he must be much larger, ideally weighing about 35 pounds. Well, at this rate, he will be in his teens before he gets there.

Even though we go for weight checks every month, the doctor just acts like maybe I am not feeding him right, or maybe I am giving him the wrong stuff to eat. He kept wanting to blame all of this on the heart issues, but the cardiologist says that these issues usually do not have anything to do with weight gain (or lack thereof). I am very frustrated. I finally called the doctor back and they have referred him to a pediatric gastroenterologist. I hope she will be of some help. When the nurse called, she was asking if he drank more than 16 ounces of juice a day, or had too much soda. Lady, he doesn't drink more than 16 ounces a day of anything, ######, I'd let him eat all the soda and juice he wanted, if he would, just to get some weight on him. He doesn't like sweet stuff (won't drink pediasure at all, won't tolerate chocolate or other flavoring added to his milk). I am just not sure what else to try. He has been on concentrated formula for several months now, even though at first the doctor told us to completely wean him off the formula, but since he refused to eat anything else, after a week, we put him back on it.
I think he also has texture issues, because he does gag very easily and he seems to have a very narrow opening at the back of his throat.

I am glad I found this site and hope that we can all help each other out. In the meantime, would appreciate any words of advise, etc. I am going to ask the doctor about that medication that was mentioned, but I have a feeling they won't give him any until after they run the gamut of tests on him and decide they still don't know what is wrong with him. Sigh...
Sorry, so long.


Grizzy

Mother to Aidan.
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  #5  
March 8th, 2005, 11:40 PM
Natural Blessings's Avatar Mega Super Mommy
Join Date: Apr 2004
Location: Alberta/Saskatchewan, Canada
Posts: 1,168
My youngest was FTT. She was 6lb 5oz born at 42weeks, at 1 year was 16lbs, at 2 years 22lbs and will be 3 in a few weeks. She weighs around 25lbs. She has "caught up" to kids her own age. She doesn't grow much but the other kids have slowed down so it seems like she has caught up when she has really maintained her slow rate. she does have a unimportant heart defect called a Stills Murmur. It doesn't really do anything, it shows up when they're 1 and goes away when they hit puberty.

The dr's tried telling us to give her 1tbsp but since she eats plenty I don't give it to her. The dr's here just want to fatten her up but she doesn't need to be fat. If there were other health concerns related to her growth then maybe I'd do it. Right now the only issue we have with her is speech and she can't have too much dairy(like my middle dd).

My middle daughter has a heart condition called Bicuspid Aortic Valve which will eventually cause a condition called Aortic Stenosis, the valve that goes into the aorta grew with 2 leaflets instead of 3 so it doesn't operate properly. She will eventually need valve replacement surgery but not until she is older. Her heart condition has not created any growth problems, she is my largest child. She'll be 4 in 2 weeks and weighs around 34lbs.

My oldest was not labelled FTT but did have weight gain problems. At 9months she was losing weight, she didn't have any eating issues(my youngest had reflux and was lactose intolerant and I refuse to give my kids soy) so she was put on whole milk at 9months to make her gain weight. It didn't. It took her until she was 3 to catch up to the kids her own age.

Both my oldest and youngest have zero fat on them, especially the youngest.

I know a few ladies online who have kids who were around 18months and would eat nothing but pureed baby food. It was a mouth sensitivity issue, they could not handle/did not like the texture of chunky foods. The 1 just turned 4 the other day and now eats regular food but is picky about which foods he'll eat.
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  #6  
April 8th, 2005, 07:28 PM
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Join Date: Apr 2005
Posts: 5
Quote:
Originally posted by Natural Blessings@Mar 9 2005, 03:40 AM
My youngest was FTT.* She was 6lb 5oz born at 42weeks, at 1 year was 16lbs, at 2 years 22lbs and will be 3 in a few weeks. She weighs around 25lbs.* She has "caught up" to kids her own age.* She doesn't grow much but the other kids have slowed down so it seems like she has caught up when she has really maintained her slow rate.* she does have a unimportant heart defect called a Stills Murmur.* It doesn't really do anything, it shows up when they're 1 and goes away when they hit puberty.

The dr's tried telling us to give her 1tbsp but since she eats plenty I don't give it to her. The dr's here just want to fatten her up but she doesn't need to be fat.* If there were other health concerns related to her growth then maybe I'd do it.* Right now the only issue we have with her is speech and she can't have too much dairy(like my middle dd).*

My middle daughter has a heart condition called Bicuspid Aortic Valve which will eventually cause a condition called Aortic Stenosis, the valve that goes into the aorta grew with 2 leaflets instead of 3 so it doesn't operate properly.* She will eventually need valve replacement surgery but not until she is older.* Her heart condition has not created any growth problems, she is my largest child.* She'll be 4 in 2 weeks and weighs around 34lbs.

My oldest was not labelled FTT but did have weight gain problems.* At 9months she was losing weight, she didn't have any eating issues(my youngest had reflux and was lactose intolerant and I refuse to give my kids soy) so she was put on whole milk at 9months to make her gain weight. It didn't.* It took her until she was 3 to catch up to the kids her own age.

Both my oldest and youngest have zero fat on them, especially the youngest.*

I know a few ladies online who have kids who were around 18months and would eat nothing but pureed baby food.* It was a mouth sensitivity issue, they could not handle/did not like the texture of chunky foods.* The 1 just turned 4 the other day and now eats regular food but is picky about which foods he'll eat.
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Hello, i am new here, I just found this site. My now seven year old was ftt baby. I know how heartbreaking and frustrating it is. One tip that I have is to make every calorie count. We made mashed potatoes with heavy whipping cream, butter on everything, milkshakes and all the fattening stuff that we would love to eat. I also understand the guilt and fear of people thinking that you aren't taking care of your child. We were going to dr every two weeks to weigh and then my son became ill with pnuemonia and ended up in the hospital, the dr chose this time to say it was all our fault that he was not growing. We swithed doctors and went to an indocrinologist who could not find anything wrong. Finally we put tubes in his ears for his ear aches and then he improved but he is now 7 (today is his birthday) and six months ago he had "fallen off the growth chart" so I am anxious and scared for his check up in a few days to see if he has improved. I hate all the let"s just wait and see games the doctors play. I wished this site would have been here 7 yaears ago because it would have been very helpful. Sorry that I do not have the answers for you or an example of success but I do feel your pain.
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