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Jack's mama told me about this board. DD isn't terribly tiny, but she's only once ever hit about the tenth percentile. Usually she's 3%-8%m, she's also got a resume of other problems, developmental, physical, and everything else but mental. Today we had a GI appt (she's got chronic constipation and of course she's pretty tiny. She's 31.5 inches, so she looks very very thin. I don't think of it mch until she stands than to me she looks almost sick. Today is the first day I've learned anything abotu boosting the calories of foods. I'm supposed to be giving her high cal foods, and I'm really not sure actually what to give her. DD has issues swallowing, its hard to get anything to stay in her. If thats not enough they think shes had undiagnosed reflux. She's been on [ediasure for months with no success. They just added BOOST pudding and drinnk (the drink itself is is twice the cals of pediasure).
Anything your LO's love??
They we're teasing DD today that she'll be a panty hose model. She's so long and lean she's got legs that any woman would kill for.
A good friend of mine has a 6 month old... he may be a little shorter than her, but he looks "healthier" and he's so much further developmentally. I know they aren't related, but it's so frustrating.
"Disability is not a brave struggle or ‘courage in the face of adversity.’ Disability is an art. It’s an ingenious way to live."
Is it solid food that your daughter has trouble swallowing?
I've tried putting butter on pasta, peanut butter cups, sausage, ice cream, every fattening thing that I can think of, but since DD won't swallow solid foods, it's all in vain. She does take Pediasure and Carnation Instant Breakfast with whole milk. Sometimes I can get her to drink about half of a Danimal.
What are they doing about the undiagnosed reflux? I would recommend having a milk scan done. That would diagnose the reflux and see if her stomach was emptying properly. Feeding problems are so frustrating. Hang in there.