[lovemyboysandabbey2]

How are all our sweeties doing? Let's get an update!

[*tacii]

Jonah's doing ok. He currently has roseola, so he's been pretty miserable the past few days. Haven't put on any weight since April, but hasn't really lost either. How's Abbey doing?

[lovemyboysandabbey2]

Poor guy! Sounds awful! Abbey is doing good, very healthy, still tiny but healthy. At her one year appt in July she was weighing in at 14lbs. But so far hitting all her milestones, except talking. She has gone way down on her length also.

[lostlady21]

Not great over here. Sorry in advance for the long post...
our weigh in with the specialist was a whopping 12 lbs. 11 oz--7 oz gain in a month (again). Joey had another urine culture to make sure he didn't have any viruses that were messing with his appetite.

We got a slew of information from the physician's assistant--all the tests that will be coming up down the road. I asked about Celiac's Disease, but she said that it is extremely rare in infants--especially one that hasn't been exposed to gluten yet. I have a feeling it is on their list somewhere down the road if they can't find an explanation for his poor weight gain.

The things she told us about are as follows:
1. Go back for another appointment next Thursday to meet with both her and Dr. Guna.
2. Schedule a sweat test at Lutheran General (tests for cystic fibrosis--another rare thing that they want him tested for).
3. May possibly want to admit him to the hospital--so that we can get the rest of the following done at one time:
*renal ultrasound, endoscopy, meeting with dietician to see how we can max out his calorie intake, meeting with a speech-path to look at possible feeding problems

Thanks for all the prayers and support. It means more than you know. Now--to keep myself off of google to research everything...

[i3ai3ydanny]

Danny is doing okay...no weight gain per the allergist he actually lost a few ounces...but we are trying to add in Cheese to see if he will tolerate it...so far it is still borderline. His diarrhea hasn't become more frequent but he is having more at a time still 3 times a day so I think our next weight check will determine wether that is a good idea to continue it or not...other than that it is a watch and wait until...at this point January the 6th for an Endo appt...

[roving_gypsy]

Savannah is doing well.. she is 28.2lbs, 3 1/2 years old. They say while she isn't on the average growth curve, she is making her own little curve and hopefully we will be gaining more soon. We've exhausted tests and are now just trying to focus on what is working. She is on 2tsp of an appitite stimulant, 1/2 tsp of iron, and a vitamin each morning and then she drinks 3 to 4 8oz pediasures a day (one after each meal). But she is only gaining in oz's. so untill they start seeing gaining in lbs we will be continuing what we are doing now. She just started gymnastics and is the smallest in her class but she is LOVING it!!