[i3ai3ydanny]

How has Joey been? He looks like he has put on a little weight in your siggy. Is he doing better? Have you found anything out that has helped him?

[lostlady21]

Guess I forgot to update. Sorry!

The results from his procedures (endoscope and colonoscopy) were totally normal. They had decided to switch his formula to Nutramigen before the surgeries, and low and behold, that was the key to him gaining weight. While I'm happy that we know for sure nothing is wrong with him internally, at the same time, I'm kind of upset that they didn't try to switch the formula before he had to go through those procedures. We were released from our specialist and have been seeing our regular pedi since the follow-up appointment.

Since then, he's been great. He's nearing one now (January 31st), and I'm scared to death of trying actual milk. We're really not sure if he has a milk 'intolerance' or a milk 'allergy'. We're waiting to do milk until his one year appointment after a talk with the pedi. He does cheese fine. Yogurt is a bit touch-and-go. Sometimes it makes him sick, sometimes not.

I'll be back to update after his year appointment with the pedi. It'll be interesting to see how much he's gained. He still gains on the slow end, and I'm a nervous wreck every time we get near that scale!

I'm so glad that you guys finally have a diagnosis for Danny. That had to take a lot of weight off of your shoulders. How's he doing?

[i3ai3ydanny]

Congrats on him growing again! I am so glad that you guys got that taken care of but I too wish they had found it before the surgery...didn't you guys have that awful hospital experience?


He is doing great! He is growing steadily, no more digestive issues, no more diarrhea and he may even be able to add in a few of his allergies because of the nature of the allergies...they are protien induced and with his disorder he couldn't break down the protein...

With the milk issue I would wait until he tolerated yogurt 100%. Danny has a milk allergy and those are the steps we have to use in food challenges with him.. Cheeses are lease likly to induce reactions, then cottage cheeses, yogurt, ice cream, and milk has the most reactivity. i would stall with yogurt until he handles that all the time before introducing milk. JMHO... We will try milk, then soy, then egg, and carrots after he is potty trained due to the type of reaction he has. We have to wait four months to give him time to catch up then we can start with cheese for a month and see how he does...then softer cheese for a month...and so on through all of his allergies. So maybe this time 2012 we will finally be on a normal, nonrestricted diet!!!

[lostlady21]

That's actually a really good plan. We have to stay away from soy, we may have to do goat's milk for awhile, but anything for my little guy.

And yes, we did have an awful hospital experience. Wish I could just take that whole thing back.

We have a pedi appointment and he is now in the 21st percentile. Little chunker is 20 lbs. 13 oz. I just about fell out of my chair! I'll be lurking this board to see how Danny's doing. I'm glad he finally has a diagnosis. Wait and see--he'll start gaining like gangbusters now

[i3ai3ydanny]

Goats milk can be similar to cows milk with allergies but you may want to try rice, almond, hazelnut, hemp or coconut milk in rotations if he has absolutely no issues with milk AND you check with your allergist first. Danny can't have the nut ones because he has so many allergies and they want to avoid causing a new one but I have heard rotation is pretty effective in avoiding that. Danny is on rice milk but it is a lot lower in calories...check wtih your docs but watch for reactions with the goats milk...