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Danny went to the doctor yesterday and he said that even though he hasn't gained much in the last 7 months he is up almost 10 pounds in the past 12 months. He said his body may have just decided that it is satisfied with the growth and have slacked off a bit. He has to go in for (hopefully) one last EGD with PFT December 27th. (an endoscopy with a pancreatic function test) He is 99% certain that the diagnosis he has is correct but he has to test his pancreatic function one more time because to have an established diagnosis of Isolated Chymotrypsin Defficiency, which he is one of 9 in the world, he has to have 2 positive tests for it.
Your pancreas produces enzymes to digest your food. There are four main ones that work together and if any of them are absent or out of wack you can't digest whatever that enzyme has the key for. Chymotrypsin is an enzyme that helps digest fats and protiens so he could break them down adequately enough to absorb either effectively. There are enzyme supplements that contain all 4 main enzymes that he takes because it provides the one he is missing. It isn't too rare to have all four enzymes missing but having only one missing is extremely rare...this enzyme is the most rare to have an "Isolated Defficiency" in. It is 100% treatable though. He has to take a few capsules of the enzymes every time he eats anything but that is all. As long as I can keep insurance on him he will be fine. The enzymes are over $500 every month!!!