We pride ourselves on having the friendliest
and most welcoming forums for moms and moms to be! Please take a moment
for free so you can be a part of our growing community of mothers.
If you have any problems registering please drop an email to email@example.com.
Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!
We thought we did. He was diagnosed with Isolated Chymotrypsin Deficiency last January but he has stopped growing again even with the enzyme supplements that are supposed to make him 100% better...we will see what happens Tuesday. We were supposed to get results from a second pancreatic function test last Tuesday but Danny got sick so we had to postpone it until Tuesday.
We are not really sure what exactly causes it, but we believe that it the FTT along with the heart condition and hypothyroidism are all connected to her NF1 which is caused by a microdeletion on Chromosome 17.