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Forum: FTT and Weight Gain Issues

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  #21  
March 6th, 2011, 11:40 AM
daysfancarlymanning's Avatar Super Mommy
Join Date: Nov 2010
Posts: 581
I have answered you questions and I am NOT going to sit here and defend myself. I have not lied about ANYTHING nor do I need this drama. I do NOT neglect my child and I would give my life for her. If you don't believe me then that's your problem but I am doing what I believe is best for my baby. I would never hurt her. She does not officially have "ftt" just something the drs keep throwing at me for her low weight. I do not need sympathy from other people. However it is nice to ask for and receive some advice with what my child is REALLY going through. If you do not believe me, like I've said before, I have ehr medical records to prove it.
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  #22  
March 6th, 2011, 11:51 AM
daysfancarlymanning's Avatar Super Mommy
Join Date: Nov 2010
Posts: 581
Quote:
Originally Posted by Cheep Sk8 View Post
I didn't assume anything. I'm not "just jumping in". I joined Just Mommies over two years ago because of this board. It has never had much action until Days Fan showed up. Wonder why that is? Just check out the January 2011 playroom.
You can think whatever you like about me. I really don't care. The fact of the matter is, I call BS on Days as do several others in her playroom. I called her out because I found it disgusting that she would be trolling the internet looking for sympathy from mothers like you, me and others on this board. Mothers whose children have been through hell, mothers that would walk on glass, give up everything they own, mothers who push for more testing and another referral, mothers who have had to hold their LO down while Doctors and nurses poked and prodded, and mothers who have had to shove NG tubes down their children noses.

ETA: Being supportive does not always mean telling people what they what to hear. I'm actually a very kind and considerate person, but I will not keep my mouth shut if I think there is even the slightest chance that a real child could be involved in this.
You know I am not trying to stir this pot up but this really hurts me to be accused of lying and being a troll. I am not lying and I am not a troll. I HAVE held my baby down numerous times now while they have stuck iv's in her, cath'd her, taken tons of blood. Had echos, spinal tap, u/s and more. I thank you so much for your support from the bottom of my heart Danny's mom I don't know where else to turn with this and I do NOT abuse or hurt my baby. I just want answers. That's why I am here. I did answer all of your qustions if I recall cheepsk8. If I did not please tell me which ones and I will happily answer them for you. Otherwise please just leave me and my baby alone. I do not find this internet bullying funny when I have a sick baby and I just want answers from people going thru this who understand. Thank you.
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  #23  
March 7th, 2011, 08:13 AM
Cheep Sk8's Avatar Veteran
Join Date: Dec 2008
Posts: 212
Quote:
Originally Posted by daysfancarlymanning View Post
You know I am not trying to stir this pot up but this really hurts me to be accused of lying and being a troll. I am not lying and I am not a troll. I HAVE held my baby down numerous times now while they have stuck iv's in her, cath'd her, taken tons of blood. Had echos, spinal tap, u/s and more. I thank you so much for your support from the bottom of my heart Danny's mom I don't know where else to turn with this and I do NOT abuse or hurt my baby. I just want answers. That's why I am here. I did answer all of your qustions if I recall cheepsk8. If I did not please tell me which ones and I will happily answer them for you. Otherwise please just leave me and my baby alone. I do not find this internet bullying funny when I have a sick baby and I just want answers from people going thru this who understand. Thank you.
I really don't have much time during the week for message boards, so this is all I'm going to be able to post concerning this. I'm not an internet bully, and I never said you were abusing your child. Actually I wasn't directly rude to you, but it bothered me that you didn't want to ad the nutrimen because you were afraid she'd grow too fast. So I did a little reading and investigating (that's just my nature: if something doesn't add up to me, I look for more info).
It just seems like drama follows you wherever you go. So I will apologize for being a little defensive and assuming that you are a troll, but I won't apologize for asking you to explain why you are going against medical advice when it seems like you are facing a rather dire situation with your doctor and CPS.
This board has actually never been very interesting or supportive to me. I was pretty happy that people were finally posting. Although it wasn't helpful for me when I was going through so much with my daughter, I was happy to be able to help others in similar situations. Apparently I missed the sticky that says you have to tell people what they want to hear even if you think it's a bad idea. I will never just shut up and make nice if I think that there is even a remote chance that a child could be negatively affected. If that is what is expected, then you can have this board. Like I said, I have no strong feelings about it.
When I questioned you I knew that I'd probably take flack for it, but the thing is , Days Fan, I have personally seen how bad FTT can get . My DD bounced between the -3 to 5th % for almost 3 years. She is developmentally delayed, I had to pin her down and shove an NG tube down her nose into her throat every. single. day for 8 months. Then she had to have surgery to have a G permanently placed in her stomach. She used to get sick with 105 degree fevers that would last for 5-7 days every 3 to 4 weeks because her body was to weak to fight of the germs. I have seen so many doctors that have lost tract of them all. At one point, Kiersten had 13 different specialist. My point in telling you all of this is that my dd is finally doing well, and this is because I have listened to her doctors. I have not always agreed with them, and some of the advice I got was downright screwy, but I would try it and if it didn't work, then back we would go for another solution.
Nobody on this board is qualified to give you medical advice or has any business telling you that you should ignore the advice of both your pedi and GI. The people who are qualified are your doctors, and they know way more about your daughter's situation than anyone on here does.
Like I have always said, I wish you and your LO the best.
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