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Forum: FTT and Weight Gain Issues

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  #1  
September 27th, 2004, 12:15 PM
zonapellucida
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Ella was diagnosed at 3 1/2 weeks with FTT. She has remained small even though there is no true medical reason why. The next test she has will be for her parathyroid as shhe has excess Calcium in her blood.
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  #2  
September 27th, 2004, 12:25 PM
ranidae
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Both of the twins were diagnosed with failure to thrive and are still under the diagnosis even though to me their weight has gotten to a great point. I think it is because they have only gained 3lbs since 1yr but that is mainly due to stoping formula and increased activity.
Does anyone know when they normally stop putting this on records?
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  #3  
September 28th, 2004, 03:06 AM
zonapellucida
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I am guessing they stop using this label when the child follows "normal" chart lines--great way to make parents nuts!
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  #4  
September 28th, 2004, 10:35 AM
Natural Blessings's Avatar Mega Super Mommy
Join Date: Apr 2004
Location: Alberta/Saskatchewan, Canada
Posts: 1,168
Nadia was officially FTT, Tirza probably is in her charts somewhere.

Tirza gained 2lbs/month until she hit 3months. They normally slow down then but she was only gaining 5-10oz/month. At 9months she was losing weight so she was put on whole milk to try and get her to gain weight. At her 3 year appt she had caught up to her peers. If she hadn't they would have started testing then.

Nadia was being watched for IUGR in utero. She wasn't officially diagnosed IUGR, but she has been Small for Gestational Age since she was born. SGA is what they call IUGR after they're born. There was a knot in her cord which explained her small size in utero(6lbs 5 oz 7 19" at 42weeks) but she stayed small. She never gained more than 2oz/week and fell off the charts at 3weeks. She was developmentally behind in almost every milestone there is. At 12months it was officially FTT. She was sent to a pediatrician who's an idiot. At 14months he said he wanted her at 25% by 18months but that wasn't likely to happen so by 2 years at the latest. At her 2 year appt she finally got on the charts for height but not weight. She's 2 1/2 now and no where near being at the 25%.

They did do some minor blood work when she was 9months. She was diagnosed lactose intolerant at 3weeks. She had reflux and was on meds until she was 15months.

Asha, my middle dd was put on formula to try and avoid the weight gain problems we had with Tirza. We tried it with Nadia but with her issues she couldn't have formula. Asha always seemed larger than her sisters but since she's been off the formula she's really slowed down and probably dropped in her charts.
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  #5  
September 28th, 2004, 01:44 PM
Janelle's Avatar Super Mommy
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SRS was called on me when Avery was about 6 mos old b/c a doc said he had FTT.
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  #6  
September 28th, 2004, 02:49 PM
pattyandthemoos's Avatar Administrator
Join Date: Feb 2004
Location: Michigan
Posts: 61,535
Brandon has just now had an official diagnosis of FTT. Although he has had problems for months now. I think its because he has had incompitent doctors. I am still very worried about him. Brandon was under eight pounds at three and a half months. That should have been a sign that there was a problem. He has gone up to as far as the tenth percentile before just to drop back down. His height has always been a concern even when I get his weight up. Every time I look at him I worry. Jeremy was probably bigger than him at six months. He is really little.

Today he has eaten one real meal all day (a bowl of rice cereal, and he only ate half of it) and about one bottle. Thats all I could get him to eat today. I am feeling a little panicked today. Because his appetite is getting less and less. He sleeps a lot. And I wish that I knew more what was going on.

I worry all the time that I am going to be investigated for neglect with him. I don't know why I worry so much about this but I have had several of my friends that had FTT kids be accused of neglect and under a huge investigation. I have seen it happen to more than one person. That is one reason, I am trying to get a paper trail with his medical records. This way if anyone gets accused or prosecuted for neglect it will be his doctors. But it is something I worry about.

I get emotional about him all the time. Mostly because I don't know what to do to get him to eat better. And I am not sure why he is like this. It is good to know I am not the only one going through this.
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  #7  
September 28th, 2004, 03:03 PM
zonapellucida
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HUGS Patty--I know what you mean--Ella sometimes has no appetite and I find myself begging her to eat. I jsut try to offer her snacks as often as I can and make sure she is getting whole milk with instant breakfasts in it. Her feet are the size of the foot cast I made of my 1st child's at 4 1/2 mo. and she is only 16 lbs. at 18 months. I hurts when you get accused of being the problem when all you want is the best for your children. . . . . . . . .
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  #8  
October 11th, 2004, 09:49 PM
tig2ger4lifemommy
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Nathan has FTT on his chart. With the Severe GERD, it wasn't gaining weight right and fell behind. Plus he was small for his age. But I was told the baby would be small for size when born.

He weighs 10lbs 8ozs and is 21 3/4 inches long. However, he has a severe problem with formulas and I think that is why the FTT was also given. At one point he was below charts....now I think he goes back and forth all on the GERD problem! Plus he can want 5oz all day one day and then just 1-2 ozs the next!!

We see a specialist tomorrow. A ped gi, hopefully he will be able to help!!!
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