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When you first found out your child was FTT, what reason(s) did the doctor give you? Mine gave me a generic reason (poor eater). I hope this is the real reason, it it will be resolved soon, but I think there is more to it.
My son was in about the 10th percentile up until his 6 month checkup, between 4 to 6 months old he only gained about .5lb, and that is when he fell off the weight chart. They've done mulitple blood and urine tests, sweat test to test for cystic fibrosis, an ultrasound on his kidneys and an upper GI and everything has come back fine, normal, nothing wrong. We've seen a GI doc and nephrologist as well. The nephrologist has cleared him and we're hoping the GI doc will soon too. He finally was in the 3rd percentile at his 15 mo check up and seems to still be gaining weight. He seems just not to be interesting in food and eating more that what satisfies his appetite. Even now, he only drinks 5-6 oz, at most, of milk at a time. He's currently on Periactin to help stimulate his appetite and it's really working. I think at his next appt they will likely take him off of it and see if he can continue to gain on his own.
He hasn't been LABELED FTT, but he has weight gain problems. We saw a nutritionalist at Seattle Childrens, starting in November. He had problems from the beginning, then by 6mo. was in the 50%. By 9mo he was way at the bottom of the chart and falling. He is almost back up to the 5% now, at 20 mo and 21.5lbs. He is active and healthy, he just doesn't like to eat much and is somewhat picky. Not too worried myself, DH is more than I am, but he seems healthy otherwise.
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Amelia had stopped eating. Her weight wasn't even on the chart she was so small. Her new Gi said that he isn't concerned because although she is below the 3rd she has always followed a growth curve. Every doc is different I guess.
In the beginning, she was just generally FTT, they had no idea what was causing it. When she was 3 or 4 months old, she was diagnosed with Netherton's Syndrome (by DNA), and NS infants-2 years are notorious for FTT because they need about double the calories at any given age and have trouble consuming them. Which is why we ended up NG tube feeding her at night, so she could get the extra calories. Now, she's on Pediasure (5 cans/day, plus some solids) with no NG, and intakes about 1200 calories at nearly 17lbs.