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  #1  
September 20th, 2007, 10:31 AM
fiefer87's Avatar Mega Super Mommy
Join Date: Aug 2007
Location: Near Buffalo, NY
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My daughter is 5 and has had a feeding problems since she was 11 months old. At 11 months she learned to hold her bottle (she's visually impaired with global developmental delays) and decided to stop eating solid foods. It took us a year working with OT to get her to start baby food again. She has always been very small (below 10% curve for height and weight) but was at least maintaining her own curve, just well below what the docs would like. At 2 1/2 she was diagnosed with a growth hormone deficiency and put on daily injections of growth hormone. This helped with her height but not really her weight. From the time she was 2 (when she started eating again) until this past Feb, all she ate was stage 2 baby foods and barerly tolerated any textures. Time to eat was hgorrible screaming, crying, throwing food, gagging throwing up. We finally had to go out of state to a feeding clinic in PA and within a month of this app. we were able to get her off of baby food and onto ground table food. We have since progressed to chopped food. Since February, she has gained 7 pounds and is finally weighing 42 lbs. OUr problem: she still does not know how to chew.

Does anyone have any experience with this? We are working with OT to reduce the extreme oral defensiveness and the tongue thrust, but she just does not chew. Any suggestions would be aprreciated.
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  #2  
September 20th, 2007, 01:25 PM
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Xty Xty is offline
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I've never heard of this! So I'm not sure what to suggest. The only think I can think of is perhaps a modified barium swallow study to see if there is any issue with swallowing? And feeding evaluation by a speach pathologist? I'm sorry I can't be more help. But I offer up some hugs and hope someone else here can help a little more!
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  #3  
September 20th, 2007, 01:58 PM
fiefer87's Avatar Mega Super Mommy
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Location: Near Buffalo, NY
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Quote:
I've never heard of this! So I'm not sure what to suggest. The only think I can think of is perhaps a modified barium swallow study to see if there is any issue with swallowing? And feeding evaluation by a speach pathologist? I'm sorry I can't be more help. But I offer up some hugs and hope someone else here can help a little more!
- Xty[/b]
We did do the barium earlier for reflux (negative) and we had a scintascan (sp) done to check for gastric emptying (also normal). She does receive speech as well. Her speech therapist has been working on the tongue thrust for awhile. Sorry I guess I forgot to mention that. One thing some of the feeding clinics we went to seem to say over and over (other than the one in PA we went to in Feb) is that most visually impaired children have some sort of feeding disorder, although its usually to a lesser extent they won't eat certain textures, certain colors, mixed foods, but not many people I know of have this problem where the kid just won't chew. Alexis has been visually impaired since birth and has global developmental delays (probably should mention that too).
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  #4  
September 21st, 2007, 07:55 AM
AnnaBananasMom's Avatar Platinum Supermommy
Join Date: Sep 2005
Location: North Carolina
Posts: 14,475
I'm sorry you are having such difficulty. I can't offer any help since my daughter's issues are different. There is a member here who is having swallowing/tongue thrust issues with her daughter, though. (Sadie Cass) Maybe she has some advice for you. Maybe she'll pop in soon and give you some ideas.

It seems like you've done the right things. I know how frustrating it can be not to have any clear answers!
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