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Forum: FTT and Weight Gain Issues

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  #1  
March 13th, 2008, 09:14 AM
*TornadoJenn*'s Avatar Jenn's the name
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Let me just start out by saying that I AM getting advice from her Dr, I just would like input from people who have BTDT, Ok?

My twins were born at 33weeks and 4 days. 4.4 (girl) and 4.8 (boy) I don't have their weights written down, but at their 4 month they were 9 even (girl) and around 10.11 (boy)

My daughter was weighed Friday and was 9lbs 8oz and son weighed 11lbs 8oz

She only takes about 3oz per feeding, 5-6 times a day, and it is fortified to 24calories. She's going to be 5 months old in 11 days and she doesn't even weigh 10lbs yet! My 4 month old BARELY fits into 0-3 month clothes. Everyone looks at me like I'm CRAZY when I tell them how old she is, but usually shut up after I tell them that she was born early. I wouldn't be TOO worried if I didn't see how well her brother is doing. She's even a little more delayed than him developmentally, doesn't "talk" as much, doesn't squeal, doesn't hold weight on her legs, etc. I know I shouldn't compare them, but its so hard not to.

Early intervention is coming next week to evaluate them both due to my persistance with our Ped. I told him I was worried about her not even being near the charts with her weight, and he's having us call in her weights every 4 weeks until their 6 month check up on 4/30.

Is there ANYTHING else I can do to get this girl to gain weight? Anything I need to tell the Dr to check? Questions I need to ask? I had no idea she was labeled FTT until I checked out and looked at the diagnosis code sheet.

BTW, we are trying cereal and veggies with them both, but you have to catch them in a good mood and awake after a bottle, so its hard to do EVERY single day.

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  #2  
March 13th, 2008, 09:58 AM
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First off, I think it sounds amazing that they've basically doubled their birth weight in just 4 months.
I don't know anything about preemies, but I believe a full term baby isn't expected to double their birth weight until 6 months.
But I hear you concern and understand it, as I'm sure everyone here does. Yes, there is a lot of testing that can be done to see why a baby is FTT. I think you need to ask your ped for a referral to a pediatric gastroenterologist (GI doc). They are specialists in FTT and would be able to look at all the facts and then decide what, if any, testing needs to be done. There are all sorts of tests I've heard about for FTT, but it depends on what the symptoms are as to which they would do. Why do you feel your DD doesn't eat as much? Does she get tired and fall asleep after only a little bit of food? Does she arch her back and get mad after eating just a bit? Does she just get bored and doesn't want to eat anymore? Does she not have a strong suck so it takes her a long time to eat just a little? Does she not latch on (to nipple or bottle) well?
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  #3  
March 13th, 2008, 02:24 PM
frgsonmysox's Avatar Platinum Supermommy
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I know that you might be worried because they don't weight a lot. But you have to see how far they have some since they were born!! Thats a lot of weight to put on for little preemies! At 4 months my daughter (who was full term, mind you) weighed 11 lbs 6 oz. So she didn't weigh much more than your preemies. I think they are doing great, hun.

I know that you might be worried because they don't weight a lot. But you have to see how far they have some since they were born!! Thats a lot of weight to put on for little preemies! At 4 months my daughter (who was full term, mind you) weighed 11 lbs 6 oz. So she didn't weigh much more than your preemies. I think they are doing great, hun.
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  #4  
March 14th, 2008, 07:35 PM
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jenn, i think spencer and samantha are doing pretty good. i know it's hard to hear in the pr how huge some of those kids are, that's how it was for me with my older son. i have a niece that is 9 months old and weighs as much as jack (13.5 lbs) and he's only 3 months old. she's been tested for EVERYTHING and they can't find why she's not gaining. they are concentrating her formula and my SIL focuses mostly on her getting formula and not as much on the solids. i wouldn't worry too much about it. seeing the FTT dx is scary but, like with my son brandon, they may just be slow gainers. hugs, hun, i really think they are doing great!
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  #5  
March 15th, 2008, 12:03 PM
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You have to remember that your twins were born at lower weights, so it makes sense for them to still be smaller at only 4 months old. It looks like your daughter has still gained 5 pounds in 4 months, right? That's still in the "normal" range, i believe... I think young infants are supposed to gain 1-2 pounds a month, which your daughter has done.

Obviously your pediatrician is paying attention, so at this point i would just try and relax and see what happens over the next couple of months.

Also, i would suggest NOT trying to push the solids just yet, as they are actually lower in calories than the formula, and will only fill them up, making them drink less formula. It's actually not even recommended for babies to start solids until 6 months anyway, which would actually be *8* months for your babies, with their adjusted age.

I know it's hard to be worried about your babies, and i truly hope they are okay... Good luck.
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  #6  
March 15th, 2008, 02:11 PM
*TornadoJenn*'s Avatar Jenn's the name
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Thank you for all of your replies. I guess a big part of me just wants to be sure that IF something is wrong, we catch it before its too late. Lisa, I DO find it hard to read about other peoples babies in my PR and I guess I am in denial about their prematurity, because I keep wanting to say, they're almost 5 months, but still have to subtract 7 weeks from that.


CaedensMama, we are only trying solids for them because the Dr told us to. Its not something we did on our own. We were given strict instruction to offer it only an hour after they've finished a full bottle as to not replace their formula.

Thanks again for all of the replies. I will just keep on chugging along.
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  #7  
March 19th, 2008, 04:42 AM
1shortmomma's Avatar Platinum Supermommy
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I'm a little late but do agree with the others. They seem to be gaining well. They just started out smaller than the others. The main thing is that they keep gaining consistently. If the weight gain stops or levels off that is when I would think the Dr would be concerned about other problems.
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  #8  
March 24th, 2008, 10:28 AM
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Was just lurking here and thought I'd chime in My youngest is a preemie - she was born 13 months ago, 10 weeks early. I looked it up and at the same age as your little girl, she weighed 9lb 15oz. Like yours, she wasn't even on the growth charts! Try not to get discouraged by the fact that they are so small and it seems to take forever to make any progress with weight, smiles, development, etc. My little sweetie was 17lb 11oz at a year, wearing 6-9 month clothes, and at 13 months she is nowhere near ready to walk, can't get into a seated position on her own, and can only army crawl. We just had her evaluated by Early Intervention and they told us not to worry, that preemies can take a LONG time to develop, especially gross motor skills. Sometimes I get frustrated that she's not "normal" for her age (and in some ways not even normal for her adjusted age) but now I can look back and see the pictures from when she was first born, and in the NICU for 6 weeks, and this tiny little speck of a baby, and I know how much she has overcome - and WILL overcome. Hugs to you!
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