[Mrs.Shirley]

I don't even know where to start. I took my kids to a new pedi today for their well baby appts. and after discussing all of my child's "quirk's" as I like to call them she decided that she really wants him tested for cystic fibrosis. What? I sure didn't see that one coming, but after looking at all of his symptoms (which I've never really thought of as that...I always chalked his small size up to him just being small, or his loose stools to the amount of fruit and vegi's he eats, or his excessive thirst to how active he is) she thinks that he needs to be tested sooner than later. Right now I am just in such a state of shock and terror. I feel like I don't know how to deal with this right now. (I am already trying to take care of my mom who was diagnosed with lung cancer, my dad who is homeless, and now I have to go back to work after 2+ years.) Sorry, I know I hardly ever get to post, but I read everyday, and I didn't know where else to go to get this out. I haven't been able to stop crying all day and dh is taking it really hard. Grr...I really don't know how to handle this, and I know that he hasn't even been tested yet, but just the suggestion that he needs to be is enough to incite terror in me. I'm sorry this is so rambley, thanks for listening.
Stephanie

[Bakin8th]

I am praying for you and your family.

[Mrs.Shirley]

I am praying for you and your family.[/b]

Thank You.

[Christine-MA]

I'd say try not to worry until you know something for sure, but I know that's not possible. I'll be thinking of you!

[L-SBB]

Stephanie - I'll pray everything is ok with your son...try not to worry too much until they actual test and a specialist makes a diagnosis (I know I know, it's impossible not to worry). A good friend of mine was given a likely diagnosis with her son when he was around 2 from his pedi, which if it had been correct would have been terminal, but after going to a couple of specialists it turned out to be something much less severe.

Please KUP - I'll be thinking of you both!

[jenn27]

I just wanted to let you know that you will be in my thoughts and prayers. I can only imagine the fear running through your mind. I know it's impossible not to worry because it's just all part of being a parent but I pray that everything will turn out just fine. Please keep us posted. I will definately be thinking about you and your family.

[Mrs.Shirley]

Thank you so much ladies, your kind words, thoughts and prayers are so appreciated. I know they say when it rains it pours, but it seriously seems like it's a full-on hail storm, complete with gail force winds and tornadoes. They have also decided to send Liam to a urologist because he needs to be circumcised due to adhesions, and an orthopedic specialist for a difference of about 1/2 in in the length of his legs. I feel so bad for my baby, between all the tests he will have to endure and the circ. I feel just terrible. Thanks again girls.
P.S. I had to include a pic of him.

and my beautiful princess

[..Red..]

They are adorable! I think that Liam will probably fine. Kids do ok when they are young and have to deal with lots of doctors appointments. As long as you love him, you should be fine too.

[crybaby1220]

My son did the later cirumcision, it didn't effect him none, he ran around like nothing happened. As for CF, they tested my sisters baby girl 3 times, they were sooo sure!! Turned out she just fed her too much greens! I hope that it is the same for you. I am gonna tell everyone I meet to pray for your baby, k! A million voices are stronger than one!! Liam is in my T&P.

[KirstenM]

Will keep you and your family in my prayers

[Eleysia]

I wish I could give you a hug in real life hun

Take a couple deep breaths, and just try to think things through. These days people with CF live so much longer than 20 or even 10 years ago. They have come so far with proactive treatments to help them maintain a healthy life style. I even had a patient with CF that was happily expecting and she gave birth to a beautiful baby boy Not that you have gotten results of his testing to show he does have it, (which I pray he does not) but I just wanted to try to give you a little reassurance that they have come so far in the medical feild that he really wouldnt live a bad life. Ill definatly keep your little man in my thoughts and prayers.

[klt]

When I light my prayer candle tomorrow, I will definitely be thinking of you and your absolutely beautiful little boy! I hope everything turns out to be OK.

[heathernoell6]

I know EXACTLY what you are going through. When my oldest dd was 3 and my youngest dd was 6mos, my pedi (who by the way had been my pedi since the day my mother delivered me), told me- point blank- "your daughters both have NF or Neurofibromatosis". My whole world turned upside down. I lost it!!! I cried for weeks. My dh (at the time, now xdh) said that they didn't know what they were talking about. My parents chose denial. I was absolutely alone. Now, 6 years later, I have somewhat come to terms. I still have NO IDEA WHATSOEVER TO EXPECT! I know that all of us have children, expecting them to all be perfect. I walked around for 2 years, breaking down at the sight of a "seemingly" healthy family. I finally realized that we look like a healthy family too. My nine year old said the other day that kids with nf have to go to the doctor more. I, loosing it, said yes. She proceeded to say, "that is great. Then if there are any problems, they know right away!" God, she is AMAZING!!! I hope that this is an unnecesary (sp) scare. But, if it isn't, know that your child will be amazing. You will learn more than you ever thought possible. Please PM me! I still, 6 years later, need as much support as ever. Hugs and prayers are heading your way!!!