Forum: Trying to Conceive after Loss
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Platinum Supermommy
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Join Date: Apr 2007
Location: So. California
Posts: 5,770
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On the baby we just lost at 13 weeks, the test just came back that the baby had no chromosomal abnormalities, but the genetic counselor left a message so I didn't get to find out of the baby was a boy or girl. I will be calling her tomorrow.
I think I should be glad that the baby was healthy, but it also makes it harder to accept the loss.
They are also testing for Mowat Wilson Syndrome, which our son has, that test will still take a few more weeks.
I just wanted to share, have some of you been through this?
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Regular
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Join Date: May 2009
Posts: 84
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I lost my son at 18 weeks almost a month ago. His tests came back negative too. It's disconcerting because you still don't get a reason for why it happened. And since nothing was wrong with the baby, I started to question myself.
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Mega Super Mommy
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Join Date: Sep 2008
Posts: 4,213
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Sara,
I didn't have the testing done after my loss. But, I just want you to know that I'm thinking about you. I hope you're doing OK. I'm just a PM away if you need anything. Take care and keep us posted. You're in my prayers.
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Mega Super Mommy
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Join Date: Dec 2007
Location: Missouri
Posts: 1,862
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I'm thinking of you. I didn't have testing done either. KUP.
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photography co-host!!
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Join Date: Feb 2009
Location: Holly Springs, NC
Posts: 12,913
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I also lost at 15 weeks.. They were very vague with the pathology results, and they would not tell me if I had lost a boy or girl.. It was very upsetting, It sounds like you were given a lot more information than I was.. ((((((hugs)))))) to you, I am so very sorry for your loss.
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by Kiliki! Thank you so much!!!
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Mega Super Mommy
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Join Date: Jan 2009
Location: Pittsburgh, PA
Posts: 1,571
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Oh I'm sorry Sara. It's difficult to not to know why these things happen... are there any other tests they can do? I'll be getting test results back in a month or so from our second loss. I'm not sure why it takes so long, but I'm interested to know what that brings back too... The problem with chromosomal tests is that they are really so basic - there's so many mutations you can't see via this method (Sorry.. that's the scientist in me talking). Of course, there's really no good method to see them at all that's practical to test for. I guess the bottom line is, that many of us won't ever know.  I wish we did... having a reason and knowing whether or not it might happen again somehow makes me feel better...
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Kristin
Blog on RPL and TTC
Dx Hetero Prothrombin and Factor V
*Forever missing our three butterfly angel babies*
~December 08~ ~May 09~ ~September 09~
Proudly breastfeeding, pumping, and cloth diapering my little sweet pea!
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Platinum Supermommy
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Join Date: May 2009
Location: Pennsylvania
Posts: 14,553
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Firstly big ! I too had testing done after I lost my son. They said he was perfectly healthy. So to this day I have no reason as to why I lost him. That makes things the hardest when you don't have a reason. But someone very wise told me that the reason we must believe our child was taken is because they were perfect. They didn't need to learn anything they were already ready for heaven. HTH.
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Platinum Supermommy
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Join Date: Apr 2007
Location: So. California
Posts: 5,770
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Quote:
Originally Posted by farasha
Oh I'm sorry Sara. It's difficult to not to know why these things happen... are there any other tests they can do? I'll be getting test results back in a month or so from our second loss. I'm not sure why it takes so long, but I'm interested to know what that brings back too... The problem with chromosomal tests is that they are really so basic - there's so many mutations you can't see via this method (Sorry.. that's the scientist in me talking). Of course, there's really no good method to see them at all that's practical to test for. I guess the bottom line is, that many of us won't ever know.  I wish we did... having a reason and knowing whether or not it might happen again somehow makes me feel better...
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You are absolutely correct, our son's syndrome is caused by a genetic mutation which does not show up on a chromosomal test. The reason we had testing done is because we already have a special needs son and we wanted to know if it really was a sporadic occurrence, which is most likely, or something we caused. We have both been through genetic counseling and extensive testing.
In a way I feel relieved that there was nothing wrong with our little angel because I have hope for a future healthy child, but still, just wondering how others handled this.
And yes there are more tests that are being ran that are not back yet.
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Bébé Cowgirl
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Join Date: Sep 2008
Location: Texas
Posts: 7,638
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I'm sorry the testing didn't provide any answers to you...I had very very basic testing done on my loss and all my OB told me is that it confirmed chromosomal issue with the baby. I think the not knowing why is hardest of all HUGS
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Lara
Under The Sea Savannah!
Remembered Forever with Love
10/13/2008 (@9w2d)
10/18/2011 (@8w5d)
2/12/2012 (@4w3d)
~It is absurd to divide people into good and bad. People are either charming or tedious. ~ Oscar Wilde
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Mom of 4
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Join Date: Jan 2009
Location: Ontario, Canada
Posts: 8,497
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I'm sorry Sara. I didn't even have an option for them to test, so I will always be in the dark. I wish I could have at least found out if it was a boy or girl.
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I'm so sorry Sara. I didn't have testing done either. I hope you are able to get some answers, I wish I could help
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Mega Super Mommy
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Join Date: Jul 2008
Location: Chesapeake, VA
Posts: 1,418
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Sara, we did an amnio before my D&C and they tested for Chromosomal issues and we were just told that everything was normal, we lost her at 17 weeks. Its rough to not know but DH said he was glad everything was normal because that meant that there weren't any specific issues to worry about next time around.
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Platinum Supermommy
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Join Date: Jan 2009
Location: Canada
Posts: 10,829
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I'm sorry that they had no answers for you, Sara. *HUGS*
Autumn passed away at 9 weeks, but we didn't find out until 12 weeks. The pathology testing came back normal, and there was no genetic testing done.
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 Missing our angel baby since Feb 7, 2009 
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