Forum: Trying to Conceive after Loss
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April 6th, 2010, 09:09 AM
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Mega Super Mommy
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Join Date: Jan 2010
Location: Illinois
Posts: 2,233
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Msg from the specialist I emailed.
Lisa, You should continue to receive weekly MTX injections until your hCG level is undetectable. After you have three undetectable levels at weekly intervals, you should be tested monthly for 12 months. You should not try to get pregnant for a year (12 months) after you complete your treatments because of the risk of recurrence. If your physician has any questions regarding your management, I would be happy to talk with him.
I normally do not recommend IUD insertion until after the patient has a negative hCG test because of the risk of infection or perforation due to tumor. However, if it's in place and you are doing well I wouldn't remove it . DPG
So I got my results this morning and my result was 39.74
I have no idea what to do now. Dr. Goldstein (not my dr. I just emailed him about it) said that I still need the injections. I called the gynecologist oncologist and I am still waiting to hear back from them. I told them my numbers but they are going to wait to decide what treatment I need when they get the faxed result. If I have them contact Dr. Goldstein I have a bad feeling that they will change my wait time to TTC to 12 months. I don't want that. 6 months is bad enough.
*** On a good note my reg. OBGYN said they could do my bw for $13 if I don't get my ins. reinstated. That is a huge plus b/c it looks like I am going to have to get it next week afterall.
Diagnosis: PMP – XXY
D&C date: Induced @ 15w4d – Vaginal delivery: 12/16/09.
D&C 2/19/10.
HCG levels (with dates or week number) :
1/26: 434
1/28: 314
2/2: 264
2/3: Methotrexate Injection #1
Chest X-Ray: Clear
2/10: 188
2/11: Methotrexate Injection #2
2/15: Met with Genetics Counselor and u/s showed retained tissue
2/19: D&C #1
2/26: 144
2/27: Methotrexate Injection #3
3/8: 94
Referred to oncologist
3/15: 71
3/22: 59
3/24: Met with oncologist
3/29: 45
Cleared to conceive: 3-4 months for 2/3/2010
4/5: 39.74
__________________
Jacob Matthew born 5/30/11 at 5:27 pm 8 lbs 9 oz and 19.5 in long
  http://www.fertilityfriend.com/home/1db5ff
Mommy loves you!
Thank you Shortcake for my siggy!
  Thank you Shortcake for my siggy!
Gabriel Matthew- Induced @15w4d on 12/16/09 (Partial Molar Pregnancy). Took 6 1/2 months reach negative after 3 methotrexate injections, D&C 2/19/10, & 6 rounds of chemo Act-d.
url=http://www.myfitnesspal.com/weight-loss-ticker]  [/url]
Created by MyFitnessPal.com - Free Calorie Counter
"Now I lay you down to sleep,
I pray the Lord your soul to keep;
Within his arms he'll hold you tight,
My Heavenly Angel, My Guiding Light."
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April 6th, 2010, 09:34 AM
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Just Rachel
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Join Date: Oct 2004
Location: Taneytown, MD
Posts: 107,214
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Wow. I'm sorry you're still dealing with this. ((hugs))
Really glad to hear you can get your blood work for only $13!
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April 6th, 2010, 09:54 AM
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Platinum Supermommy
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Join Date: Jul 2008
Location: Texas
Posts: 10,400
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 I'm so sorry this keeps dragging on for you. The $13 BW is great news. I hope you get some answers soon.
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April 6th, 2010, 10:01 AM
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Mega Super Mommy
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Join Date: Nov 2009
Location: Utah
Posts: 2,071
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I am so sorry Lisa. This has to be so hard for you. I will be praying for you...
__________________
The adventures of raising a big family....Life, love and family in the Sock Bin! www.thesockbin.blogspot.com
Our rainbow baby Brynlee Sue was born August 17th after four heartbreaking loses! Life is an amazing journey. Hang on, keep your faith and try to always move forward!
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April 6th, 2010, 12:04 PM
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Platinum Supermommy
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Join Date: Jan 2009
Location: PA
Posts: 8,385
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Geeze Lisa you have been though so much... HUGS... I am so sorry that you have to go through this for long..HUGS
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April 6th, 2010, 12:07 PM
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3 Princes & 1 Princess
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Join Date: Nov 2005
Location: PA
Posts: 72,640
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So sorry you are dealing with this.
Massive hugs.
xxx
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April 6th, 2010, 12:36 PM
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Mega Super Mommy
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Join Date: Sep 2009
Location: Wisconsin
Posts: 3,307
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im so sorry for all that you have been going through.
__________________
** Thank you Oona for the awesome siggy**
Cycle 24. First IUI cycle canceled  , Cycle 25, Second attempt at IUI - canceled due to two large cysts , Third attempt at IUI canceled- cyst on left side still to large
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April 6th, 2010, 12:52 PM
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Platinum Supermommy
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Join Date: Aug 2008
Posts: 10,638
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I'm sorry about the bad news..
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April 6th, 2010, 02:12 PM
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Platinum Supermommy
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Join Date: Feb 2008
Posts: 6,985
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Wow Lisa.
Well..first of all the #s do seem to be going down...thats great.
As far as TTC...that is just one opinion. I would personally (if possible) get a few opinions and then make a decision.
I am so so sorry this is happening. I hope your levels drop asap!
Katie
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April 6th, 2010, 02:51 PM
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Platinum Supermommy
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Join Date: Jan 2008
Location: Wisconsin
Posts: 7,264
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big big hugs to you!!! i'm so sorry!!!!
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April 6th, 2010, 03:03 PM
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Platinum Supermommy
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Join Date: Feb 2009
Location: illinois
Posts: 6,536
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Lisa, Im so sorry for the news you recieved, this must be devestating on you and your husband. For what its worth, another opinion from another oncologist might be in order. But I trully feel that an oncologist is the only type of opinion that is in your best interest here. No other dr. can give you an educated decsion on what the likely hood of reacurrance is. This opinion comes from a long history of cancer myself, and only an oncologist can determine what the risks are involved with your situation. Please do seek a second opinion, I trully belive in them. (Ive had several opinions on conveiving after my cancer, and one of my dr.'s did not want me to ever conceive again) Im praying for maybe a better outcome for you, as I know your heart will not trully heal until you get a baby in your arms.
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April 6th, 2010, 05:44 PM
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Mega Super Mommy
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Join Date: Jan 2010
Location: Illinois
Posts: 2,233
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Just spoke to the oncologist and they are going to start ACT-D now. I am scared our of my mind right now. Not really sure what to think about it all.
__________________
Jacob Matthew born 5/30/11 at 5:27 pm 8 lbs 9 oz and 19.5 in long
http://www.fertilityfriend.com/home/1db5ff
Mommy loves you!
Thank you Shortcake for my siggy!
Thank you Shortcake for my siggy!
Gabriel Matthew- Induced @15w4d on 12/16/09 (Partial Molar Pregnancy). Took 6 1/2 months reach negative after 3 methotrexate injections, D&C 2/19/10, & 6 rounds of chemo Act-d.
url=http://www.myfitnesspal.com/weight-loss-ticker] [/url]
Created by MyFitnessPal.com - Free Calorie Counter
"Now I lay you down to sleep,
I pray the Lord your soul to keep;
Within his arms he'll hold you tight,
My Heavenly Angel, My Guiding Light."
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April 6th, 2010, 06:50 PM
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Platinum Supermommy
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Join Date: Jul 2008
Location: Texas
Posts: 10,400
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I'm sorry you have to get the ACT-D but I hope it helps you get through this faster
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April 6th, 2010, 06:58 PM
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Mega Super Mommy
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Join Date: Jan 2010
Location: Illinois
Posts: 2,233
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I am going tomorrow to get bw done. Hoping they will do treatment tomorrow so I don't have to make another trip this week. It is a 2 hour drive (4 hours total)
__________________
Jacob Matthew born 5/30/11 at 5:27 pm 8 lbs 9 oz and 19.5 in long
http://www.fertilityfriend.com/home/1db5ff
Mommy loves you!
Thank you Shortcake for my siggy!
Thank you Shortcake for my siggy!
Gabriel Matthew- Induced @15w4d on 12/16/09 (Partial Molar Pregnancy). Took 6 1/2 months reach negative after 3 methotrexate injections, D&C 2/19/10, & 6 rounds of chemo Act-d.
url=http://www.myfitnesspal.com/weight-loss-ticker] [/url]
Created by MyFitnessPal.com - Free Calorie Counter
"Now I lay you down to sleep,
I pray the Lord your soul to keep;
Within his arms he'll hold you tight,
My Heavenly Angel, My Guiding Light."
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April 6th, 2010, 09:05 PM
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Proud JM hostess
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Join Date: Jul 2009
Location: @ JM if I'm not at work
Posts: 5,209
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I replied to other post, but so thankful that they're going to treat you and get you thru this! Hope that it's quick with minimal side effects!!!
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» Trying to Conceive and Family Planning
» Trying to Conceive after Loss
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Officially freaked out now! Update from blood work (after a loss)
- 03/28/10 
