[EVY&EGYsMommy]

Hi girls. First of all...thank you all for being so awesome. I hope we all get our BFPs...you know the STICKY ones...he he he...ASAP.

So I went to my new GP last Wed. She was nice. She referred me to OB about the two m/c's (I had one in Jan at 5 weeks, and a chemical in March that I didn't bother to go to the doc for). I told her that when I was pregnant with my DD, I was tested for Celiac disease and it was a possible positive. (readers digest version: lifelong history of bowel issues. Dx with IBS at 18. Then dx with Colitis at 24....when I got pregnant at 28 I was not medicated or uner the care of a GI for my colitis. OB wanted me to be. GI thought I may have been misdiagnosed with Colitis due to my history and heritage-Irish. I went on a GF diet at 5 months pregnant until birth just in case I had it. I was supposed to have a biopsy 4 months after birth...but never went in.)

I explained to my GP that due to my recent losses, I wanted another celiac blood panel done as m/c can result from untreated celiacs. She ordered the test and I got the results today.

Anything over 8 is positive...5-8 is "maybe" (I got 7 last time). under 5 neg.

My number was 26.

Tho the definitive answer is a biopsy...I just know I have it. I do not know if it is what caused my losses..but since I just O'd yesterday...I'm headed back on the GF diet tomorrow just in case. I'll make an appt with GI and see what we will do.

Tonight I am making my husband take me out to Italian food. Its my fav and I will miss it.

I'm still a little stunned.

Thanks for reading

Katie

[zkat]

Katie,

I am a diagnosed Celiac, so any questions, concerns etc. - ask away! I have been Gluten Free for over 3 years and have learned to navigate around a lot. Warning: LONG POST! I would research your GI am make sure they are familiar with Celiac. There are a lot of myths in the medical world involving it and sometimes hard to find a Dr. that is up to date.

1) There are very, very few false positives on the blood test. Most GI's will tell you the small bowel biopsy is the gold standard, BUT most people will tell you that if you have a positive blood test and have positive dietary response, that is also a Gold standard. Biopsies are hit or miss - if the lab doesn't know what they are looking for or the GI happens to biopsy an area that is not blunted, OR you go gluten free prior to the biopsy and start to heal, then you will get a negative biopsy result. And Missed Diagnosis.

2) If you feel it is important to have the biopsy, then you must continue to eat gluten - daily. It sux.

3) Generally, it is believed that undiagnosed Celiac causes miscarriages because of malabsorption. Once your intestines start to heal and you start absorbing nutrients again, your risk of m/c is only slightly elevated. Complete healing can take 6-24 months, depending on the extent of the damage. I had no villi left in the small intestine (My stupid GI that missed it told me I had the smoothest small intestine he had ever seen). It took me the full 2 years to heal. In the meantime, switch to sublingual vitamins (dissolve under the tongue) - it will get you the nutrients you need and help you heal.

The diet can be overwhelming at first. It is a lot to take in, but you get accustomed to it and you learn to plan ahead - especially when traveling or visiting people or attending parties. It is much easier than it was 3 years ago because now wheat is required by law on the food labels in the US (Barley and Rye are not, but they are not as common). You can still have Italian food - There are gluten free pastas and depending on where you live - gluten free resturants and even GF pizza places.

I have a ton more info and recipes, but I will start with this for now.



Kat.

[Isabelle]

I hope you enjoy that Italian food. Hugs sweetie.
I'm glad you got an answer, a crummy one but at least you can now go on that diet.

Hugs to you.
xxx

[Admin-Rachel]

I'm sorry you got a positive, but hopefully now you can start to heal and get your BFP! ((hugs))

[Celena]

Katie, Kat is so knowledgable and has some great info!

I'm so sorry for the pain you've gone thru, but I really hope that you're on the fast track to getting your BFP!

[Kary♥RN]

HUGS.. Thank goodness you got some answers.. Hoepfully it will be the start of a BFP!!!

[EVY&EGYsMommy]

Thanks Girls. And Kat..thanks so much for the info so far! Mind if I PM you??

*luckily* I've been on the diet before, so I know the ins and outs. Went to Whole Foods yesterday and filed the cart with GF goodies.

I am going to research the GI docs in our Med Group and see who has the most experience with Celiac....preferably one who also dealt with fertility issues and CD. I know that the CD may NOT be the causes of my losses, but it may be.

Thanks again girls!

Katie