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Forum: Trying to Conceive after Loss

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  #1  
April 19th, 2010, 07:27 AM
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This is short, not too much to say.

Not all of the cultures came back, but the ureaplasma came back POSITIVE
Which I read can cause all sorts of neurological nerve damage! (even things like fibromyalgia, arthritis and a bunch of other things) Maybe I can get rid of that fibromyalgia diagnosis and get better with treatment of the ureaplasma!!!!

Ok, bloodwork, mostly came back "ok" except they want me back in on wednesday for progesterone blood draw. Said I hadn't done a whole lot yet and it was only 1.1... I explained I had just ovulated or thought I did, then asked if that meant I didn't. She said no, but that sounds about right for just having ovulated like that day or day before because if I haven't o'd then it would be @ a .5 from what she was saying. (what I've read anything below 5 means you haven't O'd... I know it could've been too early to tell) ****! I hope wednesday's results are penominal!

I'm mortified... what if's?, what if's? I mean dammit this cycle has seemed so perfect so far, the best I've had as far as fertility signs, CM quality & temps even. I don't know what to think if I should think at all.... honestly forgot all about the dang bloodwork and cultures. I would have remembered later today tho when they were out to lunch.

anyways, mixed emotions... don't know what to think at all and afraid
'
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on the flip side of the coin.... what if this is the cause for the fibromyalgia and if we can cure it I will get better as well??? antibiotics and then maybe the fibro will be gone?!

and yes, I've been googling... self admitted! Selective about what I'm reading I promise!


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Added info
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MYCOPLASMA, CHLAMYDIA AND UREAPLASMA

Gabe Mirkin, M.D.


WHAT THEY ARE: Mycoplasma, chlamydia and ureaplasma are among the smallest of free-living organisms. They are unlike other bacteria because they have no cell walls and therefore must live inside cells. They are unlike viruses because they can live in cultures outside of cells and can be killed by certain antibiotics. However, they cannot be killed by most antibiotics, as most antibiotics work by damaging a bacteria's cell wall. They can be killed by antibiotics such as the tetracyclines or erythromycins that do not act on a cell wall.

WHAT DISEASES THEY CAUSE: If you feel sick and your doctor is unable to make a diagnosis because all laboratory tests and cultures fail to reveal a cause, you could be infected with any of these bacteria. The only way that you will be cured is for your doctor to suspect an infection with these germs and for you to take long-acting erythromycin or tetracyclines for several weeks, months or years. They are the most common cause of venereal diseases and are a common cause of muscle and joint pains, burning in the stomach, a chronic cough, and chronic fatigue. They can cause transverse myelitis (paralysis of the spine) (1); gall stones (2); a chronic sore throat (3); red itchy eyes, pain on looking at light and blindness (4); arthritis (5,19); brain and nerve damage with symptoms of lack of coordination, headaches and passing out; spotting between periods or uterine infections (6); kidney stones (7); testicular pain; asthma (8); heart attacks (9); strokes (10); cerebral palsy (11); premature birth (12); high blood pressure (13); nasal polyps (14); stuffy nose in newborns (15); chronic fatigue (16); belly pain (17); muscle pain (18); confusion, passing out and death (19); coughing, bloody diarrhea, and anal itching and bleeding.

WHY THEY ARE SO DIFFICULT TO DIAGNOSE AND TREAT: Most doctors will not prescribe antibiotics to patients without a laboratory test that indicates a specific infection. No dependable test is available to rule in or out mycoplasma, chlamydia or ureaplasma infections. Most antibiotics will not kill these organisms and those that do have to be taken for many months and years. Furthermore, many infected people do not take medication long enough to be cured, or they may have a close contact with an infected person and become reinfected. Once these infections are allowed to persist for months or years, they are extraordinarily difficult to cure and often require treatment for many months. One venereal-disease patient in four takes medication as prescribed (20) and almost all women who still had chlamydia one month after treatment were reinfected by new or old partners (21). Usually your first symptoms from chlamydia, ureaplasma and mycoplasma are burning on urination, a feeling that you have to urinate all the time, terrible discomfort when the bladder is full and vaginal itching, odor or discharge. Other first symptoms include itchy eyes, a cough or a burning in your nose. You can be infected when an infected person coughs in your face, or you touch nasal or eye secretions from an infected person and put your finger in your nose or eye. Your chances for a cure are high if you are treated when you have only local symptoms; but after many months, the infection can spread to other parts of your body and make you sick or damage nerves, joints and muscles. If you feel sick and your doctor is unable to make a diagnosis because all laboratory tests and cultures fail to reveal a cause, you could be infected with mycoplasma, chlamydia or ureaplasma and can be cured only by taking long-acting erythromycin or tetracyclines for many months.

HOW I TREAT: I often prescribe 500 mg of azithromycin twice a week and/or doxycycline 100 mg twice a day. You may require treatment for months or years, if your symptoms have gone on for many months or years: muscle and joint pains, a chronic cough, burning on urination, severe fatigue or signs of nerve damage. However, long term treatment with antibiotics is controversial and many physicians disagree with these recommendations. Discuss your particular condition with your doctor or health care provider. For more information on some of the diseases and conditions that may be caused by these bacteria, see my reports on asthma, heart attacks, infertility, venereal disease, reactive or rheumatoid arthritis, and fibromyalgia.

1) M Abelehorn, W Franck, U Busch, H Nitschko, R Roos, J Heesemann. Transverse myelitis associated with Mycoplasma pneumoniae infection. Clinical Infectious Diseases 26: 4 (APR 1998):909-912.

2) N Figura, F Cetta, M Angelico, G Montalto, D Cetta, L Pacenti, C Vindigni, D Vaira, F Festuccia, A Desantis, G Rattan, R Giannace, S Campagna, C Gennari. Most Helicobacter pylori-infected patients have specific antibodies, and some also have H-pylori antigens and genomic material in the bile: Is it a risk factor for gallstone formation? Digestive Diseases and Sciences 43: 4 (APR 1998):854-862.

3) G Falck, I Engstrand, A Gad, J Gnarpe, H Gnarpe, A Laurila. Demonstration of Chlamydia pneumoniae in patients with chronic pharyngitis. Scandinavian Journal of Infectious Diseases 29: 6(1997):585-589.

4) K Numazaki, S Chiba, K Aoki, K Suzuki, S Ohno. Detection of serum antibodies to Chlamydia pneumoniae in patients with endogenous uveitis and acute conjunctivitis. Clinical Infectious Diseases 25: 4 (OCT 1997):928-929.

5) JSH Gaston, KHO Deane, RM Jecock, JH Pearce. Identification of 2 Chlamydia trachomatis antigens recognized by synovial fluid T cells from patients with Chlamydia induced reactive arthritis. Journal of Rheumatology 23: 1 (JAN 1996):130-136.

6) IA Tait, SJ Duthie, D Taylorrobinson. Silent upper genital tract chlamydial infection and disease in women. International Journal of STD & AIDS 8: 5 (MAY 1997):329-331.

7) A Yuce, M Yucesoy, K Yucesoy, T Canda, M Fadiloglu, A Gure, N Yulug. Ureaplasma urealyticum induced urinary tract stones in rats. Urological Research 24: 6 (DEC 1996):345-348.

8) JAMA 1997(Dec 17);278(23):2051-2.

9) S Halme, H Syrjala, A Bloigu, P Saikku, M Leinonen, J Airaksinen, HM Surcel. Lymphocyte responses to Chlamydia antigens in patients with coronary heart disease. European Heart Journal 18: 7 (JUL 1997):1095-1101.

10) Jackson, LA Campbell, CC Kuo, DI Rodriguez, A Lee, JT Grayston. Isolation of Chlamydia pneumoniae from a carotid endarterectomy specimen. Journal of Infectious Diseases 176: 1 (JUL 1997):292-295.

11) Grether JK, Nelson KB. Maternal infection and cerebral palsy in infants of normal birth weight. JAMA 1997(July 16);278:207-211.

12) N Kjaergaard, D Hansen, ES Hansen, HC Schoenheyder, N Uldbjerg, H Madsen. Pyospermia and preterm, prelabor, rupture of membranes. Acta Obstetricia et Gynecologica Scandinavica 76: 6(JUL 1997):528-531.

13) PJ Cook, GYH Lip, P Davies, DG Beevers, R Wise, D Honeybourne. Chlamydia pneumoniae antibodies in severe essential hypertension. Hypertension 31: 2 (FEB 1998):589-594.

14) PA Gurr, A Chakraverty, V Callanan, SJ Gurr. The detection of Mycoplasma pneumoniae in nasal polyps. Clinical Otolaryngology 21: 3 (JUN 1996):269-273.

15) 9% of newborns get a stuffy nose taht is casued by mycoplasma and cannot be cultured by routine laboratory methods. NM Iskandar, MB Naguib. Chlamydia trachomatis: An underestimated cause for rhinitis in neonates. International Journal of Pediatric Otorhinolaryngology. 42: 3 (JAN 1998):233-237.

16) S Wessely. Chronic fatigue syndrome. Journal of the Royal College of Physicians of London. 30: 6 (NOV-DEC 1996):497-504.

17) L Cirasino, A Marccotti, C Barosi, F Massaro, A Silvani. Misdiagnosis of post-traumatic splenic rupture in a patient with acute cold agglutinin disease due to Mycoplasma infection. Scandinavian Journal of Infectious Diseases 29: 5(1997):522-524.

18) Y Aihara, M Mori, T Kobayashi, S Yokota. A pediatric case of polymyositis associated with Mycoplasma pneumoniae infection. Scandinavian Journal of Rheumatology 26: 6 (1997):480-481.

19) Braun et al. Chlamydia pneumoniae- a new causitive agent of reactive arthritis and undifferentiated arthritis. Ann Rheum Dis 1994;53:100-105. 20) Gerard HC et al. Screening of synovial tissue from reactive arthritis patients for the presence of chlamydia pneumoniae. Arthritis Rheum 1995;38:S394.

19a) TM Korman, JD Turnidge, ML Grayson. Neurological complications of chlamydial infections: Case report and review. Clinical Infectious Diseases 25: 4 (OCT 1997):847-851. cerebellar dysfunction, followed by respiratory failure requiring mechanical ventilation.

20) M Augenbraun, L Bachmann, T Wallace, L Dubouchet, W Mccormack, EW Hook. Compliance with doxycycline therapy in sexually transmitted diseases clinics. Sexually Transmitted Diseases 25:1 (JAN 1998):1-4.

21) SD Hillis, FB Coles, B Litchfield, CM Black, B Mojica, K Schmitt, ME St Louis. Doxycycline and azithromycin for prvention of chlamydial persistence or recurrence one month after treatment in women - A se-effectiveness study in public health settings. Sexually Transmitted Diseases 25: 1 (JAN 1998):5-11.

22) TV Poggio, N Orlando, L Galanternik, S Grinstein. Microbiology of acute arthropathies among children in Argentina: Mycoplasma pneumoniae and hominis and Ureaplasma urealyticum. Pediatric Infectious Disease Journal 17: 4 (APR 1998):304-308.

23) J Haier, M Nasralla, AR Franco, GL Nicolson. Detection of mycoplasmal infections in blood of patients with rheumatoid arthritis.Rheumatology, 1999, Vol 38, Iss 6, pp 504-509.Nicolson GL, Inst Mol Med, 15162 Triton Lane, Huntington Beach,CA 92649 USA.

24) S Johnson, D Sidebottom, F Bruckner, D Collins. Identification of Mycoplasma fermentans in synovial fluid samples from arthritis patients with inflammatory disease. Journal of Clinical Microbiology, 2000, Vol 38, Iss 1, pp 90-93.

Checked 8/9/09

C/P from another article by Dr.Mirkin

The authors showed that three months of antibiotics does not cure fibromyalgia, chronic fatigue syndrome or presumed Lyme disease. However, people who have reactive arthritis must be treated for longer than three months, often for more than a year. We still do not know what chronic fatigue syndrome or fibromyalgia really are.

An article from the University of Washington, Seattle demonstrates that fibromyalgia, chronic fatigue syndrome, temporomandibular joint syndrome, irritable bowel syndrome, interstitial cystitis and chronic headaches share the same symptoms, occur in the same people and doctors can't find a cause or treatment (27). I have prescribed doxycycline 100 mg twice a day for several months, and sometimes azithromycin 500 mg twice a week, and some get better. However, this treatment is controversial and is not accepted by most doctors. Please check with your doctor. See also report #G144.
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Last edited by Celena; April 19th, 2010 at 02:03 PM.
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  #2  
April 19th, 2010, 07:51 AM
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Big huggies, hang in there
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  #3  
April 19th, 2010, 07:58 AM
DukesMommy12's Avatar Steph
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Im so sorry Celena
Just get better and then take it from there.

I hope all your blood work come out wonderful!
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  #4  
April 19th, 2010, 08:00 AM
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i'm so overwhelmed...i won't be on for a while, need to do some things in RL first
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  #5  
April 19th, 2010, 08:59 AM
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Celena hugs! I pray that when they treat the ureaplasma that all your symptoms go away and you get your BFP! I finally tested negative for the ureaplasma.
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  #6  
April 19th, 2010, 09:00 AM
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You are getting my text messages... but I got sick of typing from my phone, lol.

First of all lets get the ureaplasma fixed. Can they fix it? It sounds like if you get that fixed then it could mean good things. ((Hugs)) ... bad results from the doctor always hurt.

You keep telling me to stay strong, well you do the same girly. We are in this together and we can be sad for a short time but then need to get up and fight!
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April 19th, 2010, 09:05 AM
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Celena... HUGS... but you have some answers! And if you can get rid of being in pain!!! How awesome would that be? And I think when you go Wed for bloodwork.. it will show that you have ovulated... I was stalking your chart yesterday and your temps are looking great! I think everything will work its self out!!! You will be painfree holding a little miracle babe in your arms!!!!
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April 19th, 2010, 09:11 AM
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Oh and Celena I wanted to tell you that I was on Antibiotics for about 3 months and now I'm testing negative. So don't give up hope girl! Even though it wasn't what you are hoping for maybe this is the answer you have needed all along!
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April 19th, 2010, 09:25 AM
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April 19th, 2010, 09:33 AM
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I'm glad you got some answers, and I hope you can get everything worked out. I know this must be a lot to take in, don't stress yourself out too much with the what if's.
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April 19th, 2010, 09:42 AM
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((hugs)) I really hope this is an answer to your fibro!
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April 19th, 2010, 10:28 AM
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Hang in there!!! I am glad you got some of your tests back. I hope you get the rest of your results soon! Keep us posted on your blood draw on Wed.
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April 19th, 2010, 11:35 AM
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and dont worry i google almost every single test result i get!
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April 19th, 2010, 01:47 PM
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Celena, I cant help but feel hopeful for you! I know you are disappointed BUT wow, if the answer for you is antibiotics!! My fingers are crossed for the rest of your test results. This could be it for you Celena! Im probably very naive about all of this, and I dont know enough about it, I just hope it turns out to be something like antibiotics and thats all! Hugs hun, good luck!
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April 19th, 2010, 10:26 PM
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These anti-biotics are making me SICK... haven't been drinking soda lately and I **** sure need some cola for my stomach. Nausous, pukey, that yucky heartburn feeling and over salivating GROSS
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  #16  
April 19th, 2010, 10:35 PM
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Hon I'm sorry to read about this. I looked but haven't been able to find how long you'll have to take them? It's kind of late so I might have missed that info.
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April 20th, 2010, 03:08 AM
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Celena I know with my antibiotic I took my pills with food. The doctor told me to eat a little then take it then finish my meal. I hope they work for you and stop making you sick. If they continue to make you sick they can change it to another medicine. Hugs
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April 20th, 2010, 10:05 AM
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Celena, I'm sorry you tested positive, but I hope this is the answer to your fibromyalgia. KUP on your blood draw tomorrow- I hope you O'd and that this is your cycle!
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April 20th, 2010, 11:32 AM
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Thank you ladies!!!

I've been taking the antibiotics for 2 days as of today, yuck.... it calms down after a while but generally feel sick from it.
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April 20th, 2010, 12:41 PM
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yUCK, WHAT DID THEY PUT YOU ON?
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