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01/12 UPDATE!!!!! Oh brother, what now? (pg/loss/etc)


Forum: Trying to Conceive after Loss

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  #1  
January 11th, 2011, 02:32 PM
Celena's Avatar Proud JM hostess
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UPDATE UPDATE UPDATE UPDATE!!!!!!

The nurse from the RE's office called saying my pregnancy resolved itself, DUH I knew that until you scared the crap out of me!!! Anyways, my hcg was down to 2, estrogen 42.1 (or was it 45.1) & progesterone .1 so I haven't ovulated yet (which is another DUH-UMB, I knew that!)

So that's it! Said if I don't get an AF in 30 days to call them.


















So apparently I have my volume too low on my phone because I missed 4 calls from the RE's office this morning in a span of under an hour. I didn't realize it until I went outside to refill my meter at my parking spot. Listened to the messages which all said "Celena this is Dr F's office we need you to call us back immediately" or that it was important to call immediately. Anyways, I called her back... they went ahead and aquired my lab results & u/s from the perinatologists office. Dr F seems to think I'm having another ectopic according the levels and I'm assuming she checked out the u/s as well. (how the hell can you establish an ectopic just from a few beta's???)

What would they do as a next step.... either methotrexate (again) or D&C. Which at this point I'm almost leaning towards the D&C, but then I become negative in thinking with my luck they'll screw something up and worst case scenario which I don't even want to type.

So as numb as I am, this is feeling like insult to injury right now.

I DO NOT WANT TO LOSE ANYMORE OF MY FERTILITY!!! However on the flip side if they go in to do a D&C what if they "find" something, like perhaps teh fibroid IS causing these issues of recurrent loss? or perhaps the endo biopsy was from a good spot as opposed to a bad endo spot (because the research I've done you're supposed to have several samples done of different spots because endo does not cover the entire uterus it is patchy. So that is the "silver lining" that I'm trying to find.

The perinatologist said they saw a halo of the sac via abdomenal u/s. The transvaginal u/s my uterus was full of blood, that much I knew of what I was looking at... I don't think they saw much of anything. There was a round black spot in my uterus which may have been the sac, but I can't tell you. All I know if there was NO 6wk3d baby with a beating heart in the pictures I saw.



I will say that my symptoms were disappearing, today my nipples are more sore again. Who the hell knows?! And the nausea I'm attributing to the stomach bug floating around because I do feel like I'm getting sick. Chills, fever, body aches, general malice...


d'oh... just added....

Oh wait, the nurse did say she would call me with the results tomorrow and we'll go from there. Honestly this loss hasn't been like any other... my bleeding has been wonky. The day I started bleeding it was bright red and medium/heavy then it stopped that night like something was blocking my cervix. The next day some more bright red, but not super heavy like I have been in the past right now I'm just spotting again. I don't get it. Have been having some abdomenal pain and some pain on the left side :/
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Last edited by Celena; January 12th, 2011 at 12:25 PM.
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  #2  
January 11th, 2011, 02:37 PM
.:Shortcake:.'s Avatar Platinum Supermommy
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Hugs Celena! I am so so sorry that your having to go through all of this. I just wish it could all be over for you and you could heal. Praying for you!
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  #3  
January 11th, 2011, 02:43 PM
Celena's Avatar Proud JM hostess
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Thank you Katie maybe we'll get some answers out of this?
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  #4  
January 11th, 2011, 02:49 PM
avasmom603's Avatar Mega Super Mommy
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Seriously, enough is enough!! I am so sorry you are going through all of this. I will be praying for you Celena. For your health, some closure and some answers, too.
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  #5  
January 11th, 2011, 02:53 PM
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Celena you must think positive and I'm praying that you do get some answers! I love you and stay strong!
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  #6  
January 11th, 2011, 02:55 PM
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OY That sucks so bad, Celena. Here's a couple of ectopic-related facts I happen to know:
1) They CANNOT diagnose an ectopic based on betas alone; that is preposterous
2) Sometimes with an ectopic you get a pseudosac in the uterus; that could have been what was on the u/s; or it could have been a regular/non-ectopic blighted ovum type sac
3) A D&C will not resolve an ectopic unless it is some rare ectopic that is sort of in the uterus; it won't fix a tubal, for example, which is the most common kind. However it could be useful for diagnostic purposes and possibly for figuring out if you do have fibroids or something.

I am concerned that your doctors are retarded. Is there somewhere you can go for a second opinion/further testing??? Also, if you are having ectopic-related bleeding and that's what your uterus is full of, doesn't that mean it's rupturing and you should be in agonizing pain?

I'm SO SORRY you are going through this, it is SUPER LAME and I really hope that either your docs smarten up or you find a new one!!!!! And I hope hope hope it's not an ectopic... I will be stalking you hun, I hope this gets resolved soon and you stay safe and sound and without undue damage to your tubes and uterus... HUGS
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  #7  
January 11th, 2011, 03:03 PM
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Celena, I am confused, too. It doesn't really seem clear WHY they are worried about an ectopic. I hope it's nothing and your doctor is just crazy (but maybe this is all the more reason to get a second opinion on all your testing, etc?)

Crossing everything that this is a big scare over nothing
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  #8  
January 11th, 2011, 03:04 PM
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I would totally get a second opinon.
Sounds to me like they are scaring you into a D&C so they can make more money off you. I am so down on DR's and think they are just out to make as much money on us as possible.


SO sorry that you even have to deal with this.
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  #9  
January 11th, 2011, 03:08 PM
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Oh my goodness I am so sorry that after everything you have gone through you now have to go through all this bull**** I hope they can figure out what is going on. My thoughts and prayers are with you
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  #10  
January 11th, 2011, 03:09 PM
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I am so sorry Celena! It is really not fair that you have had to go through all this. I just pray that you get some answers out of all this that will aid in you conceiving a healthy LO sooner next time. HUGS!!
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  #11  
January 11th, 2011, 03:14 PM
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i am so sorry you have to go through all of this hun, hopefully you get some answers. you will be in my thoughts.
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  #12  
January 11th, 2011, 03:19 PM
Brittanie's Avatar just me
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Quote:
Originally Posted by shen7 View Post
1) They CANNOT diagnose an ectopic based on betas alone; that is preposterous
Not necessarily. Hormone levels with an ectopic pregnancy can continue to rise, but not at the rate a healthy pregnancy would. If her levels aren't falling, and they're rising a little, it could be reason to suspect an ectopic pregnancy.

But I agree, a D&C will not usually resolve it, and it seems dubious that they would want to do that.



Celena, I'm SO SORRY you're going through this again! Ask lots and lots and lots of questions and/or get a second opinion!
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  #13  
January 11th, 2011, 03:20 PM
StaceygirlPa's Avatar Waiting for our Miracle.
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Celena, I am so sorry you are going through all of this. I wish there was something I could to help you. I hope your doctors are wrong. Hopefully with everything you are going through you will fine some answers. Sending lots thoughts your way.
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  #14  
January 11th, 2011, 03:28 PM
tobi4's Avatar Tobi
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I agree Celena, What now! Youve been through more than enough already, I thinks its about time you got a break! My thoughts are with you, I hope that everything is ok with you tube. Please keep us posted
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  #15  
January 11th, 2011, 03:28 PM
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Quote:
Originally Posted by Brittanie View Post
Not necessarily. Hormone levels with an ectopic pregnancy can continue to rise, but not at the rate a healthy pregnancy would. If her levels aren't falling, and they're rising a little, it could be reason to suspect an ectopic pregnancy.
No, this is not true. Abnormal hormone levels are CORRELATED with ectopics, but you can have an ectopic without abnormal rises, and you can have abnormal rises without an ectopic. It is like a test that has some false negatives and false positives. They CAN'T say, "we know you have an ectopic based on your betas" they can only say "we are concerned that you could quite possibly have an ectopic based on your betas." Here's a medical textbook for more info:
Gynecology: integrating conventional ... - Google Books

and another source (emedicine):
Pregnancy, Ectopic: Differential Diagnoses & Workup - eMedicine Emergency Medicine

Sorry if that's overly technical or overkill, but I want to be clear!!!
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  #16  
January 11th, 2011, 03:32 PM
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Brittanie and Shen, didnt you both say the same thing? If Im reading it correctly you both say its reason to suspect.
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  #17  
January 11th, 2011, 03:36 PM
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Honestly, what else could you possibly have to worry about. This is just crazy. I would question why they think it is ectopic. Are you having pain? They can't diagnose it by just betas. Are they rising? Did they ever do another ultrasound? I know they did an abdominal and couldn't see anything but did they ever try to do a vaginal? If the bleeding has slowed down, they should be able to do a vaginal and see what's there. A D&C wouldn't fix an ectopic either. Usually, a D&C is done if you are retaining tissue which would explain if the betas aren't dropping.
I hope they get their crap together and figure things out. Seriously, worrying you isn't what they are supposed to be doing.
Hang in there girlie. You are still in our thoughts and prayers.
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  #18  
January 11th, 2011, 03:38 PM
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I really hope it's not an ectopic Celena! You've been through so much!

Quote:
Originally Posted by tobi4 View Post
Brittanie and Shen, didnt you both say the same thing? If Im reading it correctly you both say its reason to suspect.
I agree !
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  #19  
January 11th, 2011, 03:44 PM
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To clear up: Brittanie said I was wrong when I said you cannot diagnose an ectopic simply based on betas. She pointed out that the betas provide some information, which is quite true. But it is UNTRUE that someone could just look at 2 or 3 betas and say "I now know that you do/do not have an ectopic." It is just one piece of evidence in making a diagnostic decision. The ultrasound is considered much more important, in addition to other factors like whether you have signs of internal bleeding.

I'm not trying to be witchy-with-a-B Brittanie!!! I just get a little heated about ectopics because of my experience with my own, and I've done a lot of research on them trying to understand what happened to me, and what would go down if it happened again. Sorry if my tone was rude!
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  #20  
January 11th, 2011, 03:46 PM
Celena's Avatar Proud JM hostess
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Well with my previous ectopic my levels kept rising as if they were normal, but then they slowed and not doubling properly along with abnormal bleeding... (that morning I had had the first amount of blood/spotting which the previous night DH & I had had sex... had a bad dream longer story) but what sent me to the ER was the fact I was doubled over in pain and to be honest I was so constipated at the time (have u/c) that I thought it was from that because the u/c can and has caused severely painful cramping... when I get to the ER they sent me over the radiology because of the bleeding/spotting and did a t/v u/s. The fricken tech asked if I was there for an ectopic pregnancy, so she ended up spilling the peverbial beans before I really knew. The bleeding scared me, but I really thought the pain was bowel related...

So long story short, my dr's office had several u/s;s done on me as well, it really was ectopic... treated with methotrexate which I think was too late because in the "labor" I was in was EXCRUCIATING. my husband was rubbing my back, holding me trying to help me thru it while I leaned on a heating pad on high. The fricken pain meds did NOTHING for the pain and all in all months later I find out my left tube completely blocked which really probably ruptured that night.

So this is why the RE is concerned for ectopic, my previous pregnancy was... I went thru hell with it and the thing that SUCKED the most was that the RN said when I called her about the progesterone to begin with (like Dr told me to do when I got a BFP) was that they wanted my bloodwork to see if it was ectopic because low progesterone is a signal it might be. which I thought was ODD.

So I'm confused and worried.

Yes, I want to get a third opinion or even a fourth.
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