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Anyone else here with MTHFR and/or Factor V Leiden?


Forum: Trying to Conceive after Loss

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  #1  
December 10th, 2013, 09:43 AM
The Purple Butterfly's Avatar Stacey
Join Date: Apr 2007
Location: Atlanta, GA
Posts: 10,093
It's apparently very common to have the MTHFR mutation. So, who here has tested pos for it and what mutation do you have? Are you taking any supplements for it? I have the A1298C mutation and am currently taking methylated B12, folate, and B6. I also take DHA, D3, CoQH, and calcium. I need to go see a hematologist to find out if I should be on baby aspirin while TTC or if I should just wait until I get a BFP. I have 3 clotting factors (see siggy).

If you haven't been tested for it, PLEASE do! Knowing you have it and taking the proper supplements for it can avoid a lot of heartache!
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Stacey, wife to Allan & Mom to:
Anastasia (14) C/S, 8lbs 7oz, 20.5"
Noah (11) C/S, 8lbs 12oz, 19"
Oliver (5) VBA2C, 7lbs 3oz, 19.5"
Grayson (10/16/13)2VBA2C, 9lbs 12oz, 22"
born still at 39w pg; Protein C def, FVL, PAI-1 , & MTHFR
Lavender Kate (5/20/14) 2.5oz, 6" Lost at 16w
Eleanor & Penelope (2/6/2015) 3VBA2C, 1lb 11oz and 2lbs 5oz,
identical twin girls born still at 26w.


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  #2  
December 10th, 2013, 11:04 AM
.:Shortcake:.'s Avatar ♬♪Music Soothes my Soul♪♬
Join Date: May 2009
Location: Pennsylvania
Posts: 17,539
I do have 2 of the mutations (I cannot remember offhand which ones). I am on a baby aspirin daily, extra vitamin D3, C and E. And my doctor also recommended probiotics (not sure why). Now this was all recommended by the RE I saw. My regular OB just said baby aspirin for me. I honestly think different doctors have different protocols for it. I agree everyone should be tested for it. They do not think mine is the cause of my losses but could not prove otherwise.
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My Angels- 12-15-08 @ 13w3d♥ 05-09 @ 6w2d♥ & 2 Early Losses♥ Twins 9-7-10♥ & 10-2-10 ♥ 2/11/11

Expecting my baby boy May 9th
Emergency cerclage put in 12/24

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  #3  
December 10th, 2013, 12:19 PM
Danielle80's Avatar Mega Super Mommy
Join Date: Jan 2006
Location: Hunter Army Airfield (Richmond Hill), Ga
Posts: 3,667
I have mthfr. It's the c667t. I take a baby aspirin, multi vitamin, vit d, vit b, calcium. I have been monitored for it since 2006. No one really knows much about it. Very annoying. Hugs! I know you have a lot to deal with right now.
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Danielle: Mom to Caitlyn (16), Brooklynn (12), Jackson (8), Lincoln (5), & Baby Harrison


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  #4  
December 10th, 2013, 06:04 PM
The Purple Butterfly's Avatar Stacey
Join Date: Apr 2007
Location: Atlanta, GA
Posts: 10,093
Ladies, you REALLY should be on the methyl vitamins. Because you have MTHFR, you HAVE to take B vitamins in the methylated form since the mutation messes with the methylation process. Otherwise, your body isn't getting the folate and B vitamins in the right form to even use them. THIS can cause multiple m/c. Please check out this site for more info. MTHFR C677T Mutation: Basic Protocol | MTHFR.Net

Katie, it's because MTHFR can cause leaky gut. Having a heathy gut helps your body properly process vitamins and minerals.
__________________
Stacey, wife to Allan & Mom to:
Anastasia (14) C/S, 8lbs 7oz, 20.5"
Noah (11) C/S, 8lbs 12oz, 19"
Oliver (5) VBA2C, 7lbs 3oz, 19.5"
Grayson (10/16/13)2VBA2C, 9lbs 12oz, 22"
born still at 39w pg; Protein C def, FVL, PAI-1 , & MTHFR
Lavender Kate (5/20/14) 2.5oz, 6" Lost at 16w
Eleanor & Penelope (2/6/2015) 3VBA2C, 1lb 11oz and 2lbs 5oz,
identical twin girls born still at 26w.


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  #5  
December 11th, 2013, 06:00 AM
.:Shortcake:.'s Avatar ♬♪Music Soothes my Soul♪♬
Join Date: May 2009
Location: Pennsylvania
Posts: 17,539
Quote:
Originally Posted by The Purple Butterfly View Post
Ladies, you REALLY should be on the methyl vitamins. Because you have MTHFR, you HAVE to take B vitamins in the methylated form since the mutation messes with the methylation process. Otherwise, your body isn't getting the folate and B vitamins in the right form to even use them. THIS can cause multiple m/c. Please check out this site for more info. MTHFR C677T Mutation: Basic Protocol | MTHFR.Net

Katie, it's because MTHFR can cause leaky gut. Having a heathy gut helps your body properly process vitamins and minerals.
Thank you!! Where do you get yours at? I'm hoping to discuss it more with the RE when we start the IVF process as well as some testing for Auto-Immune diseases.
__________________

My Angels- 12-15-08 @ 13w3d♥ 05-09 @ 6w2d♥ & 2 Early Losses♥ Twins 9-7-10♥ & 10-2-10 ♥ 2/11/11

Expecting my baby boy May 9th
Emergency cerclage put in 12/24

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  #6  
December 11th, 2013, 07:03 PM
The Purple Butterfly's Avatar Stacey
Join Date: Apr 2007
Location: Atlanta, GA
Posts: 10,093
Quote:
Originally Posted by .:Shortcake:. View Post


Thank you!! Where do you get yours at? I'm hoping to discuss it more with the RE when we start the IVF process as well as some testing for Auto-Immune diseases.
I got mine from Amazon.. Pretty cheap! Seeking Health has a fabulous line of methylated vitamins.
__________________
Stacey, wife to Allan & Mom to:
Anastasia (14) C/S, 8lbs 7oz, 20.5"
Noah (11) C/S, 8lbs 12oz, 19"
Oliver (5) VBA2C, 7lbs 3oz, 19.5"
Grayson (10/16/13)2VBA2C, 9lbs 12oz, 22"
born still at 39w pg; Protein C def, FVL, PAI-1 , & MTHFR
Lavender Kate (5/20/14) 2.5oz, 6" Lost at 16w
Eleanor & Penelope (2/6/2015) 3VBA2C, 1lb 11oz and 2lbs 5oz,
identical twin girls born still at 26w.


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