hello

SheilaRN · #1 March 31st, 2007, 04:24 PM

Hi Ladies!

I've been lurking for quite some time and knew all the while that I would eventually join you all here on the board.
Just wanted to introduce myself.

I'm Sheila and I co-host PG Loss. I have 1 more cycle of bc until we are officially ttc.

Last Nov I went into pre-term labor at 29wks. Our sweet Annika didn't make it due to her lungs not developing. There were also other complications but ultimately she couldn't breathe on her own and didn't have any lung capacity to even have assistance. Through an autopsy we were fortunate(as I know many never know)to find out what exactly was wrong. It turns out Annika had a very rare syndrome called Pena-Shokeir. Even if she had made it to full term the chances of her even making it to a year were very slim.
As sad as I was too see her go, I am truly thankful she didn't have to suffer.

We were told there is too little info of this syndrome to give us concrete info on future pgs. Basically we were told we would fall into 1 of 2 groups. Of the couples who have had to deal w/ this syn 50% will never have it happen again.

While the other 50% have a 25% chance of it happening again.

There are no genetic test that can be run to determine which group we fall into. Talk about nerve wracking!!!

So here we are giving it one more shot!! I feel like I'm playing Russian Roulette but if we have a healthy pg it will be worth all the worry.

Talk bout long winded.

Sheila