Our Endo stories, diagnosis, treatments, procedures, remedies etc.
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I first got af at age 11. They started out bad. The pain was awful. The amount of bleeding was awful. I started in 6th grade. By 8th grade my mom had taken me to a doctor and they started my fun years of bcp that would make my periods soo much better. NOT. The only time I found relief before I turned 19 was when I was in my senior year of high school I was on a mediciation that raised my Prolactin level so high I had no af. Talk about a nice 6 month break. After that stopped here she came back and roaring like a lion. I kept looking for new doctors and still nothing. I was told that the pain was in my head that I needed to suck it up and deal with the normal cramps women get. I missed soo much school and work because of my stupid endo.
I was 22 when I found out I was pg. Shocking because it was after a really weird af. I had a blood test done the day before she was due and bam. it was neg. so how in the world could I be pg? I wasnt pg for long. At 8w I lost my first baby. My doctor still refused to help other than oh it was just a fluke. Jan 07 another bfp followed by two days later a m/c. Still no help from him. I asked soo many times to do a lap because my mom had to have a total hyst by the time she was 24. I always felt that I was on a time line of having children. Still he did nothing. May of 07 another bfp followed by a week later another m/c. I decided then I needed some help and needed someone to hear me.
In July of 07 I found my miracle. His name. Dr Asbery. He was a new dr in the town next to me. He specialised in infertility so I knew he was my guy I had a gut feeling. I went into see him slightly disappointed. He thought very possibly that I could have endo but he wanted to try 3 months of bcp and if nothing we could do lap. October 2007 I went back in there with no relief and scheduled my surgery.
Nov. 26th 2007 The day my life changed. My surgery was what he called a success. He removed endo from my ovaries and tubes everywhere. He said it was Moderate and worse in spots its how he described it. He said that my glands around my uterus had grown into it. Not sure what that means to this day but yeah. I had fibroids and my uterus was a complete mess. So he got it all cleaned up. He told me to start Lupron but I didnt have the money at the time. My first af sucked bad still from pain. I will never forget this date.
Jan. 28th 2008. I had my very first af WITH NO PAIN!!!! I could not believe it. I went in to talk to him about my period for fear I had gotten pg. lol He told me at that point he didnt know that I could get pg because my tubes were a mess when he was in there he wasnt sure I was O'ing. He wanted me in for blood work and to see him the end of Feb. Boy was he wrong.
Feb 23 2008..Af was one day late. As awful as af was she was NEVER late. My bff gave me a test. OMG ++++ for someone who's tubes were supposedly blocked. They sure gave me a eggie and a bfp LOL. I was soo scared she took me straight to the hospital. My numbers were 149!!! wow for 3w5d that was good enough for me to be happy!!! Needless to say bam Oct 21st 2008 the baby boy in my siggie was born almost 3 weeks early!
Dr gave me depo in Dec at my 6w pp check up said it would help the endo not grow back. He didnt tell me all the awful other side effects to it. Now here I am 6m past depo and still no real af no nothing.
Sorry for it being so long but this is my story up until now.